bioStories Blog is an extension of the online magazine bioStories: www.biostories.com. Essays from the magazine, news, updates on contributors, and other features appear here.

Friday, June 28, 2019

Heartworm


by Devorah Uriel
          
A shrill whistle cuts through the warm summer air and I spin to follow the sound, my mouth suddenly dry. Fear takes up residence in the heart like a writhing thing. The mother of all worms, it grows plump and comfortable. Some people believe the heart is the place where love resides. I’m not so sure. The sharp snap of a twig, and my worm begins to thrash. 
          A brindle hound leaps through the tall tow-colored grass responding to the call of its owner. Releasing a gust of air, I bend to kiss the head of my own four-legged companion, who is sniffing the ground near my feet. The off-leash dog park is spacious, an open place where the breeze can flow between sounds, where internal alarms can quiet, where panic can be more easily soothed.
            Countless things can activate my fear. Car brakes screeching. A child screaming. Fireworks. My partner’s angry scowl. Someone, anyone running. Thunder. Arguments. Light coming from under a door into a dark room. Shadows. Men with large hands. Not having correct change. Baths. The dark. Closets. Rope. Women with straight, black hair. Anything sharp. 
            There was no singular event. My fear was nurtured day-to-day, in tedious, predicable moments. I survived being locked in a closet and being bound by twine to my bedposts. I survived the rhythmic lashings of the belt, and the creeping touch of my grandfather’s hands. I didn’t survive the scorn and disapproval in my mother’s eyes. She continues to influence my thoughts. I know how to not believe everything I think; I don’t know how not to feel everything I feel. And I feel too much.
            I feel my clammy hands, my pounding heart, and the urge to run. I feel unable to breathe, and the dull pain from pinching myself. I feel my lips stuttering and unresponsive, the cold sweat dripping down my spine, and the need to pee. I feel bound to the knots in my stomach. I feel disoriented and angry. I feel alert, watchful, and exhausted. I feel crazy. Mostly, I feel afraid.
            It turns out fear is fertile ground for worms. I’ve learned to confine mine to my left ventricle, to refuse it room to spread. When it’s sleeping there where I have confined it, I get a taste of another life: my skin can warm to my lover’s touch, my heart to the affection of friends. But the worm will awaken, and I can’t know if it will be in the middle of the night or in the middle of the grocery aisle. 
            Every spring I take my dog to be tested for Heartworm, then we go to the dog park. Bounding across the fields and jumping to kiss me when he returns, I know that his heart is clear. I take comfort in giving him the preventative, understanding that my worm is a lifelong companion, that my fear has burrowed too deep.
          My life depends on vigilance and a kind of perverse caretaking. When my body clamors in distress, my mind must counter with calm denial. I must acknowledge fear’s power but deny it control. I must simultaneously soothe it and starve it. I must not let it own me. The worm is resilient, but I am strong. I will fight for my life.
          I startle at a cracked twig. “Shhhh, it’s not real.” I coo to myself. “Nothing is going to hurt you anymore.”

Devorah Uriel is a retired family therapist and teacher. She’s worked with families at risk of losing custody of their children and with young children with attachment disorders. She now lives and writes in Denver, Colorado. Her stories have been published in Write Denver and Dime Show Review. She recently completed her memoir, Mama Dama Doozy, about growing up in a crazy house.

Wednesday, June 12, 2019

Noise


by Zach Reichert

“Why’s it gotta be so loud?” the patient in Room 2 groaned. “I’m going crazy in here.”

A high-pitched alarm chirped beside his head, slicing through the room with each tone. He covered his ears.

I reached to mute the noise. “How’s that?” I asked.

He paused and looked around the room. Sounds echoed from every corner of the hospital, building to a volume that was impossible to ignore. He looked back at me, his eyes half-closed against the glare of the sun in the window.

“Still sucks,” he answered. “Any idea what it’s like trying to sleep with all this noise?”

I can’t speak on sleeping in hospitals, but I know enough about the noise to sympathize. I think of the alarms and monitors, the voices of nurses and doctors, the cries and moans of the injured and sick filling hospital rooms like smoke. Many patients get lost in this cloud of noise, left to cope with their illness in loud and crowded rooms.

Unlike my patient in Room 2, Gloria was accustomed to coping. At only twenty-one, she was already a hospital regular. She had her favorite rooms and meals: the seventh floor was best, where the rooms were brightest and the food was warm. She knew that she needed exactly two blankets and four pillows to rest comfortably.

“I’m telling you, man, I could write Being a Patient for Dummies. I’d strike it rich,” she told me.

We met during Gloria’s second hospital admission of the month. Not a personal record, according to her. Not even the worst month in recent history. She looked at me and shrugged. “I’ve been sicker than this,” she said.

Gloria was born with spina bifida, a defect in her spinal column that damaged the nerves feeding her entire lower body. She told me that, as a child, she often sat in her wheelchair at the park, watching her brothers race from tree to tree. They dodged leaves and branches, jumped over rocks and fences, and zig-zagged through rows of swings.

“I watched them, then looked at my own feet and wondered how it felt to move them. To feel the ground. I dreamed about it all the time.” She glanced at her legs. “I even wanted to fall and scrape my knee, just to see how it felt.”

Bladder control was another dream. Every few hours she catheterized herself to prevent her bladder from overflowing, and wore diapers, just in case. She had frequent urinary tract infections and took antibiotics like daily multivitamins. It made her feel dependent, old, abnormal. Either that, or “normal” meant fevers, chills, and nausea. It meant relying on others to help her bathe and living with greasy hair and dandruff when they couldn’t. It meant days filled with shots, pills, IVs, and surgeries.

“I’ve seen some pretty old and sick people around, and I think, yep, I’m just like them. Fine in the morning, but in the ICU by night.” She stopped, her jaw set, eyes still on mine. “But I’m not the only one here. Others have it worse.”

There was her older cousin with Down syndrome and severe heart problems, a friend who was orphaned after a tragic accident, a hospital roommate who died in bed only ten feet away. And then, there was her father, who had spent the past twenty years downing plastic bottles of whiskey and vodka, who came home for a few days at a time before wandering off again, leaving her mom and two brothers alone for weeks.

“Maybe he lived with another family,” she thought, “one that was easy to care for.”

But this wasn’t where it ended for Gloria. Her father was more than just a disheveled, absent alcoholic. He was aggressive and violent.

“When we were kids, we could almost feel it, my brothers and I,” Gloria said. “After he drank, his voice would get loud and he’d start walking and stumbling all over the place. He’d yell at Mom, and that’s when we went to the other room. We had a piano in there that my older brother could play. He’d start playing and tell me to sing. I sang and cried and sang until Mom came back.”

“You sang?” I asked.

“It was all I could do,” she answered. “There was nothing else. It helped me get out of that house. Took me somewhere else until it was safe to come back. I did the same thing when I was bullied at school. I do it here, too.”

Gloria’s eyes drifted away from mine. For the first time, the room was silent. She shifted in bed and began to fidget with a pair of headphones that rested on her legs. After a minute, she sniffed and took a deep breath.

“You know I learned to sing first, before I spoke. That’s why it’s so special. As a kid, I just couldn’t put words together. My brain worked faster than my mouth. So, the speech therapist had me sing everything first.” She smiled down at the cords tangled between her fingers. “Now I’m at the community college studying music. I have to take the year off, though, because, well, you know.” She rolled her eyes good-naturedly. “I’ll go back though. And someday I’ll teach other people how to sing.”

Later on, after Gloria had left, as I walked from bed to bed seeing other patients, I heard something new. It began with what sounded like a faint, rhythmic tap of the foot, like a marching band far in the distance. The sound grew louder as I moved closer. Voices rose, with notes pitched high and low. In a room near the end of the hall, a group of four swayed back and forth over an old lady’s bed, singing spirituals like any other day in church. An old man tapped his foot and leaned on his cane for balance. The rest held hands and sang.

Nobody knows the trouble I’ve been through
Nobody knows my sorrow
Nobody knows the trouble I’ve seen
Glory hallelujah!

The music carried through the room and into the hall, where alarms kept ringing and patients kept moaning. Voices interrupted over the intercom. Phones rang nearby. The old lady’s infusion pump clicked out of rhythm. I wondered if she noticed the chaos still filling the hospital as the choir sang from trouble to hallelujah—if she felt bothered at all as she took a breath, filled her tired lungs, and joined in song.

I pictured Gloria smiling at my question. “I doubt it,” she’d tell me, and sing along.


Zach Reichert is currently a medical student in southern California. He plans to eventually practice Emergency Medicine as he continues writing fiction and non-fiction pieces rooted in his experience both in and out of the hospital.