2014 Winter Contest Finalist
by Julie Goodale
As the Arusha traffic falls
away, we become a steady stream of safari vehicles, shades of khaki and tan. I
have left behind the slopes of Kilimanjaro and my thirty-nine companions, all dressed
in red, to head off to my solitary adventure. We drive on roads of red dirt,
through vegetation in variations of green, toward our destination. Serengeti. A
dream of adventure. A dream of the wild. A dream of Africa.
School uniforms—maroon and
white, green, orange and blue— filled with waving arms dot the side of the
road. The mothers, and their mothers, flash red, orange, purple, green. Maasai
grace by, draped in red and purple. A morning flurry of bee-eaters and sunbirds
writ large upon the African landscape.
We were forty on the
mountain, plus a hundred porters. Cancer survivors and cancer caregivers.
Unlike most of my climbing companions, I have become an old hand at cancer. I
am beginning my eleventh year of surviving. They are more recent members of our
flock, some less than a year.
I recognized the greenness
of their fears and pain. I remember navigating the new landscape of a
freshly-scarred body: the clothes that no longer fit, the muscles that no
longer move the way we expect, the unrelenting fear that this might be the day
cancer comes back. But the scars fade. Like just-picked flowers, the vividness
of the color fades with the passage of time. They do not go away, but they are
no longer bright red.
My scars are grey. They
are the color of weariness—the weariness I sometimes feel after a decade of
survival. I cherish the beauty of the colors that fill my life, but of late I
feel the pull of the losses.
Kilimanjaro was not my
first climb. I started rock climbing years ago with my father. We were on
vacation, just father and daughter. He wanted to try climbing. He remembered
climbing once as a young man and thought it would be fun. I was afraid, but I
would not say no. At first, it made no sense to me: knots, rope that became
spaghetti in my hands, the jigsaw puzzle of my body moving over the rock. Then,
after two days, a new world appeared in those rocks. The ropes did not bind me;
they led me up a path most could not follow. They connected me to a world where
body parts became chess pieces on a Precambrian board; where I could look down
upon the back of a Red-tailed Hawk soaring below, calling to its mate. Two
years later, ropes fluid in my hands, tethering me to my companions, I ventured
into the barren, glacial world of high-altitude mountains. We climbed through
the Cimmerian hues of pre-dawn, the only sounds the growling of the wind and
rhythmic crunching of our crampons on ice. I glanced behind me. The clouds lay
like silvered pillows below us. Above in the midnight blue, stars shimmered.
The sky was just beginning to lighten to a deep cerulean in the east,
silhouetting the crater rim. I turned back into the wind and continued
climbing, tears stinging my face in the cold.
The last day with my
Kilimanjaro friends is spent visiting schools in Moshi, then an orphanage run
by a young Maasai teacher and an expat retired doctor from northern California.
It is here that I peer into the eyes of my loss. Brown eyes so dark as to be
almost black stare at me as a coffee-colored hand reaches out to grab mine from
an aqua gingham dress. Esther is ten, the same age my daughter would have been
had cancer not changed my plans.
I had put off having
children although I had always wanted them. In college I could more easily
imagine myself with a child than married. And I imagined myself with a
daughter. A rocky career path and rocky relationships made it easy to put her
off. Then it became easier to wait until after the next adventure. There were
always exciting things to do first, and there always seemed to be more time.
Through all the
adventures, all the relationships, she would whisper to me from the back of my
dreams. Softly calling. Finally, it was time; we would try for our child. After
just one more adventure.
The Atacama was summoning
me to Chile, to Ojo del Salado, the Eye of Salt. I was still in the midst of
planning—pouring over maps, estimating how many loads of food and water would
be needed while climbing in the driest desert on the planet. But the subtlest
change in the topography of my body interrupted the calculations.
The children at the
orphanage sing a song about a doctor to the tune of “My Darling Clementine” as
they act out a skit for us. Call the
doctor. Call the doctor, call the doctor right now. Call the doctor. Call the
doctor, call the doctor right now. Doctor’s coming. Doctor’s coming, doctor’s
coming right now.
My diagnosis, the first
one, was non-invasive breast cancer. Stage zero. Ten hours of surgery would
transform my body into a patchwork quilt of scars, but I could still go to the
Atacama in January, and I could still have my child.
A week after leaving the
hospital my plans were interrupted once again. At my first post-surgery check,
my surgeon was on vacation, so I saw her sub—a surgeon, not my surgeon.
This surgeon gingerly
removed my bandages, revealing wounds like a map of highways and subsidiary
roads leading nowhere. My pathology report was delayed. There was yelling, more
delays, more yelling. Finally, the light on the fax machine began to twinkle as
it spit out pages. The surgeon, not my surgeon, talked as he read the report.
He stared at the floor. His words swirled about my head. Tumors, poor margins,
necrosis, lymph nodes, sorry. There would be no climbing in January. This
surgeon—a father, picture on his desk of his son rock climbing—asked me if I
had children. Well, at least you won’t
have to figure out how to explain this to them.
My plastic surgeon came
in. He had left his art-filled office with the vases of fresh-cut flowers to
check on me here, where battles are fought, where lives are saved and lost,
where old magazines piled up and posters hung slightly crooked. He gave me a
long, gentle hug.
An oncologist came up to
meet me. An oncologist—he was not yet my oncologist. I did not yet feel
possessive of him. He was not yet what he would become—the most trusted man in
my life. I stared at the buttons on his white shirt as he asked if I had children.
At least you won’t have to deal with
caring for small kids while going through this.
The fourth day on
Kilimanjaro I became sick. It was too early, too low on the mountain to be
altitude. It was either food or the flu. I spent much time outside my tent
during the night in the rocks, throwing up. Between heaving, I looked out at
the lightening illuminating distant clouds. Above me the sky was clear.
While in my first round of
chemotherapy, my sister-in-law—then pregnant with her second child, my niece—invited
me to accompany her to her ultrasound, knowing that because of my chemo there
was a very good chance I would never experience my own baby’s ultrasound. I sat
in the exam room with her and my brother. The doctor spread the bluish gel on
her belly. I held my breath as we waited for a heartbeat. I sucked it in deeper
when the heartbeat wasn’t there. And then it was. The room exhaled. I listened
to that heartbeat, to the tiny, rhythmic whoosh. I listened to the breath of my
brother and his wife. The room was pulsing and rhythmic. I smiled.
The sound of that
heartbeat, from a child who was not mine, rose in my ears. My chest tightened.
Salty tears slipped into my mouth, and dripped off my face, leaving dark,
expanding circles on my shirt. I took in more breaths because I could no longer
get any air, as though the grey blood pressure cuff beside me had wrapped
itself around my chest. I fled the exam room—the doctor’s office and my
sister-in-law with her unborn daughter. I escaped into the hallway, but still
there was no air, the cuff ever inflating. My chest heaved, but my lungs could
not supply enough oxygen to my brain. The hallway began to darken and move; I
could hear footsteps—rhythmic clicks—echoing down the hall as I reached for
support. Still my lungs could not provide the needed oxygen. Until the sobs
came. Then, with soft moans, my breathing regulated.
In the mountains, when I
was too tired to have any sense of time, I would play mental games with myself
to keep moving up the mountain. Walk
until your steps fall out of rhythm. Climb to that rock where the raven sits.
Don’t think about quitting until you get to that next crevasse. When my
will failed even with those games, I would listen to the crunch of my footfalls
and count my steps. I’ll just climb eight
more steps, then decide if I’ll quit. And then, I had always gone on.
One, two, three, four…That was what ran through
my mind as I sat on the side of the bathtub, crying yet again. In the third
week of radiation I was too exhausted to continue, too tired to face another
morning in a cold room, lying in my awkward plastic mold. Each night for more
than a week I had cried, sure that this would be the time that I could not
continue. Each night I was sure that in the morning I could not return to the
sad, dark room where children lay like corpses, where parents cowered in the
hallway, where fear was tattooed on our bodies as they roasted from the inside
out. Each night, tears burned my face. Then, each morning, I would decide to go
just one more day. One, two, three,
four….
I was forbidden to climb
during treatment. Instead, I would hike in the hills near my house. The sun
would shine through the trees, creating a dappled pattern on the leaf-covered
trails. I would stop frequently to catch my breath as I struggled up to the
bare rocks atop a ridge, and feel the texture of the sun-warmed stone. I would
feel the sun toast my bald head in spite of the cool autumn breeze. I found a
small piece of quartz, white with sharp edges tinged in black, which scratched
slightly but did not hurt. I liked the way it felt in my hand. I put it in my
pocket. I felt happy.
After my initial cancer
treatments, I could have tried to get pregnant. Chemo had not thrown me
permanently into premature menopause. Later rounds of chemo did not either. Nor
did attempts to chemically shut down my ovaries, or a new trial drug. I had
been in and out of sudden but temporary menopause more times than I could
remember, each time filled with glimpses of my face changed to purple and
clothes darkened with the swamp of sweat pouring from my body. But each time
faded with a return to normalcy, my body asserting its natural function.
On a hike, just a week
before leaving for Africa, I discovered a stone deep in the pocket of the pants
I had dug out from the back of my closet. A small piece of quartz, white with
sharp edges tinged in black.
Most of my Kilimanjaro
teammates were new to high places. They had never climbed before, but had come
to climb Africa’s highest mountain. They, like me, had come here with Above and
Beyond Cancer for their own reasons: to test themselves, to prove they could,
to overcome fears and discover new strengths, to reclaim their lives. In doing
so, they discovered the difficulties of life in thin air. They retched, they
gasped. They cried, and they moaned. But they, like me, continued up the
mountain.
After enough healthy years
had passed, at an age when many people are sending their children off to
college or welcoming their first grandchildren to the world, I found myself
finally comfortable enough with my cancer to try to get pregnant. Without
success. Or rather, with only partial success. It seemed that getting pregnant
at my age, after so many years of so many cancer drugs, was not as difficult as
staying pregnant.
This group of cancer
survivors, my Kilimanjaro companions, was full of life. Charlie’s wife was
about to give birth back home. He carried a card from his four-year-old
declaring him World’s Best Father. It was laminated. Jed carried a stuffed
animal from each of his three daughters up the mountain. They hung on his belt.
Kerri carried her three-year-old daughter in her eyes. It was her first time
away. Stories of children and grandchildren abounded.
Esther, in her aqua
gingham dress with the pink and orange buttons, has a strong voice. She is 10.
As the children at the
orphanage sing us their songs, the colors of their dresses and shorts fade from
my view. I see only the grey gravel of the playground. Their voices echo in my
ears as the air grows thin. My lungs cannot get what my body requires, despite
my gasping. I try to leave, but the gate is shut. And where would I go?
Instead, I hide in the corner—grey gravel, brown gate, tan walls—out of view,
until the sobbing subsides.
On this mountain, on
Kilimanjaro, where life was stripped down to its most essential elements, there
was no moment of crystalline clarity for me. I knew already that I was strong.
I knew already that I would always continue. I knew already that unspeakable
beauty and unbearable pain could exist in the same moment. On this climb, the
truth played out for me in ways more subtle: the father, whose replaced joints
were not as strong as his will, being helped up the mountain by his son; a pack
being retrieved for a teammate as he stumbled into camp after dark, too tired
to find it himself; a hand reaching out to steady me as I retched in the rocks;
the eyes of someone whose thoughts were on her joy, half a world away.
When the children finish
singing and introducing themselves, they invade our ranks, spreading like a
flock of Red-winged Blackbirds through a field. They show us their rooms, play
some version of Ring Around the Rosie, reach out for a hug. Esther makes a
direct line through the crowd toward me, never taking her eyes off me. She leads
me to the swings. I push her; she laughs. She wants to go higher; I start to
feel nervous. She swings higher than all the other children, laughing. When I
accidentally step in the way of another swing and am struck in the leg, she
looks worried. These are not flimsy, lightweight swings; these are two-inch
thick planks. A purplish bruise immediately begins to show. I tell her it’s
fine, knowing that the hurt will stay with me for days. We trade places, Esther
pushing me. She is strong. I swing high. I soar above walls painted with blue
waves.
As long as I can remember,
when the reality of my life became difficult, my escape hatch—my fantasy—has
been running off to Africa to care for hungry children. When rocky
relationships ended, when injury delayed my career, when doubt arose, I dreamed
of Africa. I suppose most people have an escape fantasy. I suppose most people
leave their fantasies firmly in place as fantasy, never confronting the
reality. It is fantasy, after all, and the reality of a fantasy is often dirty,
ugly, and scary.
But here in this country,
with its dirt and poverty, its pit latrines and lack of clean water; in this
place of need, with its walls of blue waves and multi-colored flags, I look
into the brown eyes of both my loss and my fantasy. And far from frightening
me, the reality of my fantasy pulls me in. A hand reaches for mine and invites
me to play. It is small and soft, fitting easily in my hand. Rough nails
scratch me slightly, but do not hurt.
Part of me longs to stay,
to don bright colors and walk barefoot in red dirt. I long to flee the
dung-colored hills of a snowless mid-winter back home. For now though, I’ll
continue to wear shades of khaki and tan, and head further west into the
Serengeti in our tan jeep, and then home as planned. But I’ll continue to dream
in color—the colors of bee-eaters and sunbirds.
Julie Goodale is a professional violist living in the woods
north of New York City. She is also a passionate advocate and fitness trainer
in the cancer community; her work in this arena can be found at www.Life-Cise.com. Julie is often found outdoors, running trails,
climbing, hiking, or windsurfing. And although she is sometimes one of the
slower skiers on a mountain, she likes to think that she’s just searching for
the perfect turn.