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Showing posts with label parenting. Show all posts
Showing posts with label parenting. Show all posts

Monday, May 25, 2020

The Animal Lover at Seven and Thirty-seven


by Hannah Melin

        When Avery grows up, she will be an “animal rescuer, just like her Mom!” Every adult in Avery’s life is assigned an animal: a kangaroo for her father, a vulture for her mother. For the first week as her babysitter, I am watched cautiously from behind a stuffed lion. After a week of careful consideration, I am labeled a zebra.
        No jokes are made about Erin’s title as a vulture. Erin grins and swings Avery around in a hug when she correctly recites a fact on the wingspan of an African Condor or the lifecycle of a Common Turkey Vulture. Above their television set, framed photos of Avery in diapers are mixed in with fuzz-headed owlets, fledgling eagles, and newly hatched vultures. Foot-long, sleek black feathers are tucked between well-worn romance novels and dog-training guides.
        Avery’s hands are always ready to grip, touch, and pet. She pinches her crayons tightly between her fingers, drawing savannas with thick, heavy lines. The skin that stretches across her palms is porcelain pale, interrupted only by light freckles. Erin’s hands grip lightly. Arthritis, she says, from zoo work. The skin is paper-thin and as pale as her daughter’s. Scratch marks and scars cover her thin hands, running up past her wrist and onto her forearm. The razor-width cuts seem to track decades of self-harm, a conclusion dismissed only by the photograph of a younger Erin holding up her forearm for a massive Horned Owl to perch.
        Avery sinks into the comfy couch, immersed in a Disney movie while Erin leans against the kitchen counter, staring into her coffee mug while I sip from mine. She talks about the latest tragedy at Animal Kingdom: an aggressive male Grant’s Zebra broke out of his holding pen in the night and into the pen of a resting mother and her three-month-old foal. It trampled the foal to death and ripped off the mother’s right ear. She tears up, covering her mouth as she tells me how the mother whinnied and bayed for hours. She’s furious that the locks weren’t strong enough, but she never blames the male. It’s a survival mechanism, she says, to ensure their genetic line survives. A female won’t mate with a male if she has a foal. The male will kill the foal to confirm his own lineage. She’s glad no keepers tried to intervene during his rampage; she’s certain they’d have been trampled. The attack never makes the newspapers and I try not to wince when Avery gives me a crayon drawing of my animal avatar.
        Avery knows to ask owners if she can pet their dogs before approaching. She assures me that she knows lions, leopards, and tigers are all deeply dangerous creatures. She scoops up Rosie, a Chilean Rose-Haired Tarantula the size of my fist, without hesitation. She giggles as the fanged spider walks across her hands. She asks me if I want to hold her. I decline, but I do let Valentine, a six-inch Corn Snake, wrap around my wrist. Once I’m preoccupied with the small warmth making its way to my fingertips, Avery plops Mr. Bojangles, a six-pound Bearded Dragon, on my shoulder. It scrambles on my t-shirt and falls asleep, staining my sleeve with raspberry juice. Raspberries are its second favorite snack, after live crickets.
        Avery’s best friends are carried around with her at all times. A balding stuffed zebra, a lion Beanie Baby, and a dull yellow dog. If she moves from the room, she scoops them up in her forearms and lines them up in their new position. She engages in a constant dialogue with them. If I ask one of the stuffed animals a question, she responds in a squeaking character voice, but her personal conversations with them are one-sided. She speaks to them, pauses, and continues on with a new talking point. She doesn’t see the point in giving them voice when she already knows what they would say. Erin thinks she’ll grow out of it any day now.
        Erin attended a parent-teacher meeting last month, where one of Avery’s teachers was concerned by Avery’s introversion. She’s the same as Erin was at that age, Erin recalls. Erin seems proud to tell me that Avery prefers animals to people.
        Three months later, Snowball, their twelve-year-old house cat, drops dead in front of her food bowl. Erin sobs into her pillow. It’s too much, she says. Such reactions adds to her belief that her husband will leave her. She thinks her ex-boyfriend has been stalking her (“Make sure you lock the doors,” she tells me, “but I don’t think he’d hurt you”). She’s convinced Avery will spend the rest of her life talking to stuffed animals. She thinks she’s going to lose her job because of her arthritis. To not work with animals, she says, that would be worse than death for me.
        I tell my mother what Erin said on the car ride home. My mother has to pick me up when I watch Avery into the evenings. I’m not allowed to drive at night until I’m old enough to get my Class D.
        Avery chases their Pitbull mix around the yard, whooping and giggling. The sun glints off her hair, turning it into a writhing, glimmering halo. She stretches open her arms, inviting the dog to jump onto her and knock her into the grass. The dog does not bite, but he plays rough. Pink ridges rise across her upper arms where his dewclaw scrapes, not quite deep enough to draw blood. He shoves into her side, hard, but she tackles him back, squealing.
        At age seven, the animal lover knows no fear. She does not bother to adjust for the rest of us. She spends recess hunting for garter snakes and doesn’t bother with the comments made about her on the swing set. She lets every creature, ant and elephant alike, crawl into her heart.
          At age thirty-seven, the animal lover learns the weight of these creatures. She lets every one of them into her heart and onto her skin. They leave more scars than she can count.

(The names in this essay have been changed to protect the identities of those featured.)
Hannah Melin is a writer working out of Dallas, Texas. She studied Creative Writing at the University of Central Florida where she worked as the Fiction Editor for The Cypress Dome literary magazine. After graduating, Hannah worked as a literacy teacher for the Peace Corps on islands throughout the Eastern Caribbean. Hannah's nonfiction has been featured in Big Muddy. Her fiction has been featured in Monkeybicycle, Heart of Flesh, Night Picnic Press, and The Metaworker.

Thursday, May 23, 2019

Cutting Words


by Tracy Youngblom
         
          You know, he begins, an older person or someone in worse physical condition wouldn't have survived.
          Yes? I say, hesitant to pursue this line of thinking.
          It's better that it happened to me. I was strong and in good shape, so I didn't die. Someone else would have died.
We are seated in the waiting area of his therapist in vinyl armchairs, hemmed in by a door on one side and a small water cooler and white-noise machine on the other. We have barely made it up the stairs.
You sound like you’re saying you’re glad it happened to you? This is supposed to sound neutral, but it comes out as a question.      
As soon as we’d entered the building, I'd remembered clearly: no elevator. I ought to have remembered, since Dan had been my sons’ therapist for years; he’d saved at least one of their lives. Defeated, I pushed Elias in his wheelchair to the foot of the stairs.
          Can we do this? I asked. Do you want to reschedule?
I felt worse than stupid: barely two months post-accident, and it was my idea to start therapy. Now I'd done it. He'd been ready to talk, but now we had no way to get to the second floor. He'd been taking a few steps at a time from his bed to a chair in his hospital room, but after months in bed, he had little strength to spare. I had introduced an impossibility.
          No, I'll just use the stairs.
          I helped him stand and pivot, then lower his body backward onto the lowest step. He hoisted himself upward with his arms, pushing off his stronger right leg, one painful step at a time. I climbed behind, carrying the collapsed chair.
          We made it—he made it. Now we sit chatting, waiting for the appointment. We have no life outside recovery, so we discuss the accident and its aftermath.
          He is upbeat today; maybe the triumph of the stairs. We are recalling the details of his salvation at the hands of the many, the impeccable timing of it all. The first bystanders on the scene (one of them an EMT) removed the windshield so his bleeding would slow down in the brisk March air; the First Responders extracted him from the car in less than 20 minutes; the helicopter transport the State Trooper had called was waiting. Everything lined up perfectly. Maybe the miracle was simple: his life was saved by the timing.
Besides miracles, I am always aware of a severe irony: the drunk driver who ran into my son head-on escaped unscathed. She was on a joy-ride, going the wrong direction on the freeway, at 2:00 in the afternoon. Her injuries were minor: a broken ankle (a lifetime of addiction?).
It’s true he survived when he shouldn’t have, but recently we learned he was not so lucky; because of the force of the impact and the consequent swelling, he has been struck blind.
          I am grateful for his life, but when he suggests it was better for him to have been hit than someone else, the conversation turns serious.
           That’s hard for me to hear.
          I know.
This honesty and get-to-the-truth-fearlessly tone is one gift in the midst of much challenge. We have thrillingly deep, intimate conversations almost every day—every parent’s dream. But I am not thrilled to hear this.
          Then the door opens, and I wheel him in and wait in the white noise until the session is over and he can sit facing forward this time and bump down the stairs to my waiting car (down is much easier, we discover).
          Later I tell myself, forcefully, that I cannot be expected to be glad my son was in this accident. I cannot be expected to accept his conclusion, on top of everything else I’m expected to accept. I tell it to myself so vehemently, it almost sounds like I’m telling someone else, like God.

More than two years post-accident, Elias is himself full-force: tough, funny, uncompromising. He lives alone, brooks no objection. We don’t have daily interactions—more like weekly. I have had to abandon the worries that used to keep me up at night, have had to ward off vivid fears: of fire, of burglars, of knives and guns, of hit-and-runs, of evil-intentioned strangers. Of another unexpected call, this time the death of me (him).
I think I have done well and deserve some recognition. My son thinks otherwise. Or, he doesn’t think of me that way—as a stand-up, an example. Someone to praise, protect.
Maybe that’s why today, as we are driving, talking as we often do about the arc of this strange experience, he does it again: stops my heart with his casual observations.
I think I’m a different person since the accident.
I cringe; I think I know where this is going. Sensing my doubt, he gives a few general examples: less arrogant, more grateful.
Well, you don’t know what would have happened without the accident, I offer. Probably you would have turned out the same.
No, he says, certain. No, I’m better. I’ve turned out better.
Do you mean you needed to change? And there wasn’t any other way?
Now it’s his turn to hesitate.
I’ve grown up, he says. I’m less self-involved. Less. . . his voice trails off.
I don’t push it, though I want to stamp out this line of thinking, stop this smoldering mess before it spreads, engulfs both of us. I am not as shocked as I was two years ago, however, hearing him suggest it was better that this accident happened to him. Now he’s just pondering unforeseen benefits. I don’t like the implications, though I understand his eagerness to express gratitude for this life he’s been given.
But I am still surprised at the suggestion that this was our Fate. I don’t accept it with the brightest face possible. He can’t see my face, so he doesn’t know that I grimace often, my eyes cloud with mist, that I shake my head sadly, almost unbidden.
It’s the damn accompanying emotions that always stymy me. They lurk under my sunny surface, threaten to erupt in bouts of cursing: Jesus. Jesus Christ. Jesus Christ Almighty.
Recently, I confessed to Elias that I swear more—too much—these days.
What do you say? he asked.
I told him, and he laughed.
Mom, that’s not swearing. If you’re going to swear, make it count.
I stay quiet in the car, listening. I can see he’s also grappling with emotions, half-surprised at these insights that are just words—but words, words: all we have to invoke peace, to ward off fury and fear.
To pray, if we choose.

Tracy Youngblom earned an MA in English and an MFA in Poetry from Warren Wilson College. She has published three books of poems, most recently One Bird a Day (2018), along with essays and fiction. Her individual poems, stories, and essays have been published in journals including Shenandoah, Wallace Stevens Journal, Big Muddy, Briar Cliff Review, Potomac Review, Cumberland River Review, Cortland Review, Ruminate, Foliate Oak, St. Katherine's Review, Westview, and many other places. Her work has been twice nominated for a Pushcart Prize. She lives and works near Minneapolis, teaching English at a community college and working with adult writers in the community.

Friday, June 8, 2018

Sequence

by Sarah Belliston

Ever since my son Jack could walk, he’d head to my bookcases and pull the books from the shelves into a pile. Sitting there like a hen hatching chicks, he’d pick a thick volume and set it on his outstretched legs. He’d turn it sideways so the weight of the book rested on his feet and the cover opened into his lap. Then his dexterous middle fingers would run along each side of the book, catching just one page, and flip it down. One by one. Over and over. When the book was finished, he’d turn it around and repeat the process. My family joked that he was reading; I joked that he loved books as much as I did.
At eighteen months old, a team of doctors diagnosed Jack with autism spectrum disorder.

A hybrid is something born from two different species, or a composite built from two different things. Hybrid cars are supposed to be good for the environment. We would not have the purposeful inventions of the liger, the tangelo, or the blood lime without hybridity. (Lions and tigers do not live in the same areas so the crossbreed of the liger has only been documented in captivity.) Because of their genetics, these hybrid animals are often, though not always, infertile.
At conception, the DNA of each parent is put into a blender and cut into pieces, so the child gets a unique mix of the parents’ chromosomes. When those chromosomes merge to make sequenced pairs, they can only match with the same structure. Different species have different structures, but related species like zebra and horse or citrus fruits have enough in common to make a hybrid. In plants especially, the seeds sometimes carry the genes for multiple colors or varieties. Depending on how the plant is pollenated, a recessive color could become more common despite being he recessive trait. When the seed grows up to have the same desired trait as the parent plant, gardeners call this being “true to the parent.” Many genetic probabilities work the same in plants as in humans. These probabilities can sometimes be determined by a Punnett square.
For example, my husband, Scott, has a genetic blood disorder called hemochromatosis. Two of his five siblings also have the condition, which is relatively mild as long as you know you have it. Those with the disorder absorb too much iron, which can cause liver failure if left unmanaged for too long. Another relative had hemochromatosis and developed cirrhosis of the liver late in life, never once having drunk alcohol. My husband has to get his iron levels tested every few months. When his iron becomes too elevated, he donates a pint of blood, which makes the body produce new blood, which in turn uses up the high iron levels and returns his system to normalcy.
Before we married I took a blood test and found out I carry the recessive gene for hemochromatosis. One study estimates that ten percent of Caucasian people are a carrier, and one in 200-500 develop the disorder. Our Punnett square looks something like this:

Sarah h

Sarah H
Scott h
hh
hH
Scott h
hh
hH








Each of our future children would have a fifty percent chance of having hemochromatosis and a one hundred percent chance of being a carrier.
My mother asked me if I was okay with these odds. I said yes. I married my husband. His genes mixed with mine and the sequence of our combined DNA made a hybrid, what we thought was a good hybrid with smiles and laughs and ten fingers and toes.
I considered the known problems, but I didn’t think of the unknown. When autism appeared, I wondered what our Punnett square would have looked like. And what my decision would have been.

Some autistics have symptoms from birth, while others go through a type of regression, usually before the age of five. This regression involves a breakdown of neural pathways in the brain that can affect communication and sensory perception. Some regressions happen overnight; parents wake to find an autistic child in their neurotypical child’s bed. This kind of regression produces the common metaphor of autism as a kidnapper that has stolen the child.
Other autistics, like my son, regress slowly, so slowly I couldn’t tell you exactly when it started. All I remember is that after his first birthday I noticed more and more signs. By his fifteenth-month well-child visit I had to admit he hadn’t met any of his communication milestones. At the hearing screen a month later, I watched him lick the hinges on the door as the specialist said, “Have you considered autism?”

Science doesn’t know why people develop autism. A Punnett square is impossible. There may be a genetic component, but if so, scientists have identified over 200 possible genes that could mutate in multiple ways and result in a spectrum disorder. My most recent talk with a geneticist said they can identify a genetic cause in less than ten percent of cases. The identification success rate gets even lower when the autistic does not have intellectual delays. I think of Jack and how he did first grade math at four years old. Testing him wouldn’t give me any more answers. My husband’s sister was diagnosed with Asperger’s after we were married. Her son, who is a few years older than Jack, is also autistic. It was in the sequence all along.

There is no cure for autism. Instead there is what I like to think of as “symptom management,” which usually consists of behavior modification therapy. This therapy focuses on substituting wanted behaviors for the isolating repetitive actions autism is known for, like replaying the same five second portion of a video 200 times or flipping pages in a book for hours.
Jack started behavior modification soon after diagnosis. When he was almost three, we decided to stop. Behavior modification works amazingly for many, but it didn’t work for Jack. The therapy had made his behaviors worse and caused a larger regression. Before using behavior modification, he mainly ignored my attempts to interact with him. After the intervention he would lie down and will himself to sleep in order to escape unwanted stimulus, i.e., me.

Six months later after we stopped behavior modification, Jack was more interactive with me but we weren’t making any progress on his communication. I travelled across the country for a weeklong training on a different kind of therapy based on relationships and social communication instead of deterring behavior.
The program is called Son-Rise and has a reputation in the autism community for the claim it can cure autism. I was more interested in the therapy because it focused on attempting to understand the purposes behind the autistic’s actions. The program also has the central idea that the reward for social interaction should be the joy of the other person, not a treat or motivator (as in behavior modification). So, instead of a cue to look someone in the eye, the parent/facilitator acts in a way that makes them interesting to the autistic and then rewards any glance with an overexcited response. In essence, they teach the autistic how interaction with another human being can be fun.
By the end of the week, there were many things about the program I knew would not work for my family or my child. To complete the program with fidelity, you need a dedicated playroom where the autistic stays for eight hours a day while different volunteers rotate through, ensuring that every moment is maximized for therapy and the environment is controlled to decrease the likelihood of surprises for the autistic. I could do the gluten-free and casein-free diet they suggested because Jack only ate a few items anyway. But when they told me to take away screens, I balked. Since then, I have come to see the wisdom in their words. Some autistics, and some neurotypical children, have delicate nervous systems that cannot handle the input from a personal, interactive screen. They become isolated, irritable, and have frequent meltdowns. However, Jack is not one of those kids, at least not yet.
So when I came home, I adapted the new therapy to our family and my son. We used our whole house as his playroom and tried to be observant and ready to interact with him all the time, instead of just for set hours. I saw an immediate increase in Jack’s eye contact and verbal communication. When I slowed down and focused on his reactions, he gave me more of them. When I flipped pages next to him, he stopped flipping and came over to take my book, which would turn into a game of passing books from one pile to another. Our “game” was a baby step to interaction, but leaps ahead of where we were before. Our future suddenly looked brighter, and the trip we’d planned to visit my brother across the country looked brighter too.

At the Son-Rise training, one female facilitator told a story of helping a child to say their first word. When she tried to celebrate with the parent afterward, the parent denied hearing their child speak. The session had been videotaped, and the trainer said she had to play back the tape three or four times before the parent could hear what their child had said. When I heard this story, I wondered how it was possible for a parent to ignore auditory evidence, but on that trip to visit my brother, I found out exactly how it could happen.
Sometimes Jack connects with people right away. When we got to my brother’s apartment, Jack connected with his then twelve-year-old cousin, Tyson. A good big brother to three younger siblings, Tyson happily sat with Jack in front of the television. They watched the credits of a show scroll by, and Jack supplied a steady stream of what I thought was gibberish. Tyson said, “I think he’s reading the names. I can almost understand what he’s saying.” I brushed off the idea immediately. I had heard this gibberish plenty of times when Jack stood in front of our television at home or flipped pages in his books.
Later that night I sat on the floor next to Jack as his three-year-old hands and eyes concentrated on an iPad. He had gotten into an ebook app and was flipping the digital pages as fast as he could. A steady stream of gibberish accompanied the motion. I thought about what Tyson had said. I scooted closer. Jack’s gaze was fixed to one spot on the screen, the top left corner of each page. Staring with him, I listened again and it was as if a translator had been slipped into my ear. All of his gibberish suddenly made sense. I heard “the,” “and,” “this,” and “can.”
Jack was speaking.
Jack was reading.
His sequence was wrong. He read the first word of each page instead of left to right and top to bottom. He read heavy volumes instead of picture books. But there was no denying it anymore. I wondered how long he’d been reading, how long I had been unable to hear.
I felt for those other parents, the ones who didn’t understand their child’s first word. Maybe their child was like Jack who, I realized, often dropped consonant sounds, so “pig” was a short i sound and “horse” was “ohss.” Maybe the parents were like me and couldn’t believe their child spoke because the action was tied to something unimaginable, like a child who could read before he could speak, or like understanding that autism doesn’t break someone’s brain, it only makes them process information in a different sequence.

In critical disability studies, there is an “affirmation model” of disability. The idea is that society and culture have trained people to view and portray disease and disorder as negative and pejorative. This model analyzes literature that highlights the good events or actions that wouldn’t otherwise happen if disability didn’t exist. Words in the Dust is a novel that tells the fictional story of an Afghan girl with a cleft palate. The deformity allows her to pursue an education, whereas fixing her cleft palate would result in marriage and little opportunity for learning. In John Elder Robison’s memoir, he writes how his undiagnosed Asperger’s allowed him to understand machinery in a way that led him to create pyrotechnics for KISS after he dropped out of high school. Naoki Higashida, a nonverbal autistic, writes in his book that taking away his autism would fundamentally change who he is as a person.
After reading these stories, I wonder if autism will turn out to be a positive or a negative for Jack. I’m not sure what about Jack is his autism and what isn’t. I don’t know if his ability to match his voice to any melody or sound would still exist without autism, or if his laugh would still bubble up from his center and spill over into everyone within hearing distance. Would his unusually blue eyes still twinkle? Would his gaze still make people stop and pay attention if it was more frequent?

In truth, I don’t know if my husband’s gene pool caused my son’s condition, gifting him the particular sequence that resulted in his autism. There are more members of Scott’s family with autistic qualities, but it could be something in my genes that is hidden in me but manifested in Jack’s hybrid sequence. A theory called the female protection effect thinks that genetic mutations must be more severe to cause autism in women, which means that I could have passed on faulty autism genes to my son without having any symptoms myself. Another study found that copy number variations (where sections of DNA are repeated and the number of repeats varies between people in the population) are more commonly passed on from the mother’s egg than the father’s sperm. At least for one specific area called the 16p11.2 region, found in about one percent of people with autism. However, the study points out that simply having a mutation in this area does not mean the individual will always develop autism.
At this point in the research, it feels to me like it’s just as likely that everyone has a gene that could result in autism. Autism affects almost every family I know. Some more than others. One in fifty-nine children are diagnosed on the spectrum in the United States. The statistic just changed in 2018. The rise is attributed to the growing number of mild forms of autism getting an official diagnosis. An article I recently read talked about the detrimental part of having a genetic profile. Two individuals with the same sequential defect can have very different outcomes. Genetics do not determine prognosis, and yet if parents know of a serious mutation, they may think their child is not capable of progress.
After diagnosis, the thing I most wanted was for someone to tell me that my son was capable of learning, that spending hours and years trying to teach him would result in success. I didn’t want to put him or myself through the hardship of therapy without a guarantee. If he lacked ability, maybe the kind thing would be to leave him happily sitting on the floor alone with his books.
Maybe he was happy there by himself, but I also know that he was happy when a few months ago he wrapped his little arm around my neck and gave me a kiss for the first time.
Even so, I am going forward with more genetic testing. If there is an answer in the sequence, I still want to know.

I used to think that autism appeared one day and changed my son. When I began this essay I wanted it to be about how my son was a hybrid of himself and autism. But really, autism was part of him all along. I am the one who has become the hybrid.
I spent my life before Jack unconnected with autism. Now, it is my life: in my life, my house, my writing, my brain, and my heart. I begin each day thinking of autism. I’ve become the autism lady, always ready to regale people with my laundry list of facts and opinions. Now those opinions include the possibility that perhaps my son has benefited in some way because of his hybridity, his sequence.
Moments are more important to me now than milestones. I judge my success as a parent, and Jack’s success as a child, not on achieving the goals we set, but on attempting them. I have hope and am more willing to entertain the impossible. If I had never thought my son was capable of reading, I would not have been listening, and I never would have heard his words.

Sarah Belliston lives in Utah with her family while she attends BYU for her MFA in Creative Writing. She loves a good book, a good movie, and a good musical but hasn't figured out how to do all three at once. 

Tuesday, May 30, 2017

TV Dads

by John Repp

One of the raising-a-kid pieties to which my wife and I felt most committed before our son’s birth went like this: “No Television ‘Til He’s Two.” Not for our child that mindlessness. He’d have engaged parents, not zombies slumped in front of a screen. He’d grow up with actual people using actual language, not an upholstered purple dinosaur singing idiotic songs. He’d make his own make-believe, and we’d help. Why, we’d scarcely miss the tube, what with all the exciting and educational adventures new parenthood would bring.
After all, we’d lived four thriving years in a valley that defeated all but a few of our occasional attempts—even my prayerful antenna adjustments during the late stages of the NBA playoffs—to attract a viewable picture from the one network affiliate whose signal reached us. Despite being confirmed addicts, we usually felt better off for the lack, but whenever conversation, music, and reading seemed too much like work, we fed our jones with rented videos. On those stupefied nights, we’d lie contented in the rural dark, the twenty-five-year-old set with the Flash Gordon remote flickering its soothing light into the living room.
Then, in a span of three hallucinatory weeks, we moved to the city; had a baby shower; piled up the baby supplies the shower hadn’t supplied; sterilized and stocked the baby’s room; ran up heart-palpitating sums of consumer debt to replace appliances, tweak the plumbing, and fix an electric service box that resembled something in a Tim Burton film; laid in two week’s worth of post-birth food; and, just past dawn on an unforgettable day, careened to the hospital, where, ninety minutes after his parents staggered into the birthing room, Dylan swooped out and screamed for the first thirty minutes of his life.
This proved a portent. For three months, he caterwauled, screeched, howled, and shrieked whenever he wasn’t asleep or making his daily, five-millisecond visit to the “quiet alert” state. “Day” and “night” lost all meaning. We shopped at 1:00 a.m., ate breakfast at noon and dinner at ten, began doing laundry long before dawn. We crawled toward sleep like castaways inching up an infinite pumice beach, only to realize again and again we’d landed on an island without fresh water or edible fruit. We tried every colic “cure” known to science or folklore, for a time resorting to a homeopathic concoction that stained our teeth green as it failed to calm the urge to toss The Beast into the nearest snowdrift.
I exaggerate, of course, but any veteran of colic would tell you I exaggerate only a little. Though teamwork, willpower, music, and near-despairing prayer helped most during our ninety-day trial in the wilderness, the gift Dylan’s grandparents made of a new Sony did provide some welcome sedation along the way. As hysteria ever-so-slowly gave way to occasional crankiness, we evolved an evening ritual that answered our needs for the next few years: Dinner at six; kitchen and Dylan clean-up until the Pennsylvania Lottery drawing at seven (the kid loves the jingle and the studio’s array of institutional blues and greens); Frasier and King of the Hill reruns; bed for everyone at eight.
Not only did an hour a day of non-cable television generate no guilt, cause our son no discernible harm, and intermittently relieve my wife of the baby’s simian demands, but, to my abashed surprise, it also provided me images of fatherhood resonant enough to appear now and then in a dream. I refer not to Hank Hill, the good-hearted, yet profoundly damaged protagonist of King of the Hill, the best animated television series this side of The Rocky and Bullwinkle Show, but to Martin Crane, Frasier and Niles Crane’s gruff, retired-cop father.
Though loneliness and self-deception bedevil the father as much as the sons, Martin displays several times during a typical Frasier episode his (and the show’s) saving graces: common sense, a talent for cutting to the chase, a willingness to laugh at his own flaws, and a clear-eyed love for offspring so hyper-cultured they may as well be aliens. “Why do you make everything so complicated?” he’ll say with a bemused shake of the head, and I chuckle as a lump rises to my throat. Almost to the day he died, I played Frasier/Niles to my father’s Martin countless times, usually taking his bemusement as reproach, his “I’m just a simple man” as self-pity when he was more likely so baffled with love and confusion there was nothing more to be said. It infuriates me and shames me and breaks my heart that nothing I could ever say—and, like the Crane boys, I said a lot—had any chance of changing how little we understood one another.
In my recurring dream, I’m Martin Crane’s son. We climb a steep, treeless hill covered by dead grass. The low, grayish-black clouds threaten snow. He’s a hundred yards or so ahead of me, half-hopping along with the help of his four-legged cane. Stumbling as I try to keep up, I’m so convinced “they’re” about to pounce I spin around every few steps to face “them.” Every time I do, I see nothing but the frozen slope behind us and the unmarked plain beyond. When I resume climbing, he’s further away, though just when I think I’ll never catch up—this happens over and over again—he turns and waves a “Come on! This is great!” wave, a crinkly, regular-guy grin brightening his face.
Each time I’ve had the dream, it ended with one of those waves, leaving me filled with love and longing and the desire that Dylan always look for me on his climb. I’ll wave him along, even the tiniest detail of my bearing telling him he can do it, it’s OK, despite the harm any “they” might try to do. I want both of us to live the Martin Crane philosophy: “Do you’re best. If you screw up, try to make it right, then move on. Learn to laugh at yourself. Let go of the past. And above all, have fun!”
That’s the dream, anyway, a far more demanding dream than No-TV-‘Til-He’s-Two, for this one means believing there’s a chance my son and I will love and understand one another, at least some of the time. It also means admitting my father and I may not have been the strangers I need to think we were. Large and dogged and mysterious, he did help me get here, after all, his callused hand reaching back for mine at the most unexpected moments.



A native of the Pine Barrens region of southern New Jersey, John Repp is a widely-published poet, fiction writer, essayist, and book critic. His latest book is Fat Jersey Blues, winner of the 2013 Akron Poetry Prize from the University of Akron Press.

Wednesday, August 19, 2015

Give Me a Sign

by Linda Tharp

There’s a lava rock wall in front of a Maui condo complex from which a nondescript sign announces the complex’s name, a series of leapfrogging n’s and o’s heralding vacation before you’ve even dragged your jet-lagged self out of the rental car. The wall’s rocks are rough and my daughters’ skin, still mainland pale, appeared delicate in comparison as they stood under the sign for the requisite photo in their matching sundresses and Salt Water sandals, their hair not yet chlorine-brassy and their noses not yet peeling.

Nine years later Mom and Dad invited me back to Maui; they returned every April or May and always stayed at the complex with that rock wall. My husband endorsed my joining them, probably hoping time away would have a mellowing effect on me, and assured me he could handle his job, the house, three kids, and our Dalmatian for a week. A week! It was too good to be true.

“Are you sure you don’t mind?” I asked him. “Because you’ll have to get the girls back and forth to school.”

“Yeah, I know,” he said. “Don’t worry—I mean, I can drive.

I shook my head. “It’s not just that. Things come up that you never have to deal with, things you don’t even know about: permission slips, missing library books... There’s more to it than just driving.” Then I said, so quietly he asked me to repeat myself, “Besides, what about Erin?”

“What about her? I told you, we’ll be fine. Just go have fun.”

I half-heartedly bought sunscreen and a paperback or two, and agreed—perhaps too enthusiastically—when others said, “That’s so exciting you get to go!” What they didn’t know was that a lethal cocktail of melancholy and guilt threatened to derail my trip before it even started. Worse, I feared my cocktail glass would be refilled every time I saw the sign hanging on that rock wall and remembered my girls standing under it. 

I’m not sure how old they were in that photo—probably five, six, and eight. It seemed as if time stood still then, like I’d be forever unsnarling tangles from tender scalps and refereeing turns in the front seat, and I remember feeling comfortably stuck, contentedly itchy with life’s predictability. Now, even though it had been six years since life morphed from comfortable and predictable to this, returning to a spot we’d all enjoyed seemed callous, like I was trying to forget—or ignore—what has happened. Because today, Erin, our oldest, is in a wheelchair, nonverbal, and permanently disabled. She will never stand or speak again.

Six years after that photo was taken—six years after she tied a plastic grass skirt around her waist and swayed her nonexistent hips, six years after buying her sisters puka shell necklaces with her allowance—Erin lay in a teaching hospital’s ICU in a medically-induced coma, her private room so crammed with monitors and IV pumps and nurses that she seemed inconsequential by comparison. She eventually survived the tenacious virus that breached the usually unbreachable blood-brain barrier. Or, that is to say, doctors called her existence survival.

I expected things to become more complicated as the girls got older, and when Sarah, our middle daughter, accidentally baked her pet rats Phoebe and Camille in a misguided attempt to give them a morning of fresh July air (which became intense heat sooner than Sarah anticipated), I felt a perverse sense of relief despite my rants about irresponsibility. The complications I anticipated were along the lines of nefarious boyfriends and speeding tickets; sun-dried rats, I decided, would provide exemption from future catastrophe.

Often I wondered if Erin’s doctors were misguided, if their achievements weren’t necessarily in Erin’s best interest; if her survival—by their fluid interpretation, anyway—would be enough. In the era of that photo, I believed Erin’s future held more than the comfortable predictability she was raised with. The particulars swirled in my imagination like glitter, bits of hope and promise catching the light but not settling into a discernable pattern. That pattern took shape in Erin’s early teens, her passion for space exploration blossoming into dreams of a NASA career, and while she lay fighting for her life in ICU, a dog-eared NASA application packet with the return address of “Astronaut Selection Office” lay at home on her bedroom desk—which illustrates the fluidity of the word “survival.”

We did our best to maintain an illusion of normalcy during Erin’s eleven-month hospitalization, but life felt like a series of wrong choices: spending time at Kelley’s science fair awards instead of at Erin’s bedside, or letting Sarah and Kelley go to Catalina Island with Mom and Dad for the day despite a nagging fear that the ferry would sink. I was governed by guilt and doubt, no longer trusting instinct or common sense. Part of that, I know now, is because life was upended for no reason other than a willful virus. Nothing seemed safe anymore, or sacred, or sure. In a matter of hours I had gone from weighing Erin’s desire for our attendance at her space launch, to listening as a neurosurgeon recommended sawing away part of Erin’s skull. Now I was afraid seeing that condo’s sign would unnerve me more than finding those two caged heatstroke victims in our backyard. 

I was in no hurry to leave our rental car’s backseat despite the five-hour flight spent seat-belted to a barely cushioned concrete slab, my reluctance having nothing to do with comfort and everything to do with avoiding that sign for as long as possible. But as fate would have it we neither hit traffic nor careened off a cliff so here we were, pulling into the condo’s parking lot, and there it was, not thirty feet in front of us. Empty, is what I thought—the wall looked empty without three little girls in front of it. I waited for the smack upside the head I’d expected, the harsh realization that all three girls would never stand here—or stand anywhere, for that matter—ever again. The smack never came.

I spent hours on the same chaise lounges the girls squirmed on as they waited to go swimming after lunch, Coppertone making them slick as eels, and on the same beach where they built castles that melted like sugar with the tide. The smack never came, but a revelation did: even if Erin hadn’t gotten sick, even if our whole family was here right now, the girls wouldn’t be in matching sundresses, I wouldn’t pose them for another cheesy picture, and there’d be no more sand castles. It had nothing to do with Erin’s illness, and everything to do with the passage of time.

After Erin got sick I spent countless nights wondering if her survival would be enough, if blinking and breathing and swallowing would be enough for a girl with the former determination—and the former smarts—to join NASA. But in my either/or mind, I’d lumped “survival” and “NASA” together: Erin couldn’t have one without the other. When those sand castles were washed away, the girls built new ones, some more elaborate than the original, some less, but they didn’t stare at their now-vacant lot pining for what was.

The nonverbal, wheelchair-bound Erin will never join NASA. But the able-bodied Erin would not have received a standing ovation upon her high school graduation three years after she was almost declared brain dead, or be named Ambassador of the Year for her involvement with a nonprofit that provides wheelchairs to the disabled in Third World Countries ten years after that. The old Erin lived large, but so does the new Erin—without ever uttering a word.

I’ve returned to Maui every year since then with Mom and Dad. That rock wall is still there, but it no longer symbolizes evaporated plans—now it’s simply jagged stones, possibly thousands of years old, possibly manmade and bought at Home Depot, stacked like a jigsaw puzzle. And if I look closely, I see tongues orange from POG juice, fingers sticky with Roselani ice cream, and am reminded of what’s waiting at home.



Linda Tharp loved language from an early age when she first realized words can hurt you, a tactic she employed against neighborhood bullies due to her inability to throw either sticks or stones very far. She lives in Southern California with Gary, Erin, and grand-dog Maggie, and is currently writing a memoir based on the impact of Erin’s illness.

Wednesday, September 10, 2014

The Bestest Mommy

by Hazel Smith

I’m the mommy and so I am the smartest bestest mostest good cook in the world and my beautiful little boys tell me so and I am better than Laura and better than Mrs. Dyck and certainly better than the soccer coach and the violin teacher who are not the bestest at all.

And I make Peppy Pancakes with healthy ingredients, and, since there are healthy ingredients in the pancakes, we smother them with butter and syrup and we get sticky and we always burn the last batch because we forget to take them off the griddle.

And I’m the mommy and Jennifer is pretty and Mrs. Roelfsma is smart and the band teacher is a favorite, but I am still the one they greet after school with a hug.

And I make Peppy Pancakes with healthy ingredients and one kid likes Aunt Jemima syrup and one kid likes corn syrup and we get sticky and I hear tales about school … sometimes.

And I’m the mommy and Patti is awesome and college is GREAT and kayaking is the new pastime, but I am still the one waiting at the door on weekends and we ALWAYS make Peppy Pancakes and we don’t burn the last batch because the two man-boys eat them all up but now I am lactose intolerant so we don’t use butter and the man-boys stick up their noses at margarine and they have a new affinity for maple syrup.

And I make Peppy Pancakes because Son #1 is bringing home Whatshername. I don’t bother learning their names anymore because none of them seem to grab his heart and stick around for long. We sit at the dining room table on our best behavior and I explain to her that there are only healthy ingredients in these
these pancakes so it is OK to smother them with syrup and when they are all eaten, my son says, “Thanks Mom. Great meal!” and I am once again the smartest bestest mostest good cook in the world … until he deflates my balloon with the words that ensure that I will no longer be a necessary part of his pancake life. “Could you please email me the recipe?”

And my face changes. I don’t want him to have the recipe. I don’t want him to cook Peppy Pancakes and maybe make changes to the recipe, maybe make them even better than I do. I want him to come home and enjoy my pancakes. “What’s the matter?” he queries.

“Oh, nothing. Nothing at all.” I manage a smile. Bestest mommies can do that. They know how to smile when inside they are sad. He looks at me quizzically, aware he has said something that is bothering me, but he can’t figure out what that could be. I smile bigger. “I’ll scan in the recipe and send it to you. No problem.”

And I do. And I have a little cry all by myself and a few tears fall down onto the scanner and maybe make their way into the recipe and through cyber space and stay with the recipe when it reaches my son, although I think it really only arrives with lots of love and good wishes.

And I do learn the newest one’s name! She is called Claire and she is very pretty and she comes with attachments. She has a small son and a smaller daughter. They are too young to remember their parents’ divorce, but I can tell that she has done a good job in raising them. They are polite and they are gentle with the cat. I watch my son interact with them and I realize that he must be modeling himself after someone because he is kind but firm and I can tell they like him and he likes them. And he has brought them all for Peppy Pancakes, and I start to tell Claire about how they are only made with healthy ingredients so it is OK to put lots of syrup on them, and she says, “I know. I’ve heard all about them. And I’ve heard nobody in the world can make them like you do!”

And I take out my electric griddle and assemble the ingredients and it is very hard to do because my feet are not touching the floor and I am floating around

the kitchen in a haze of love and with the realization that my son has done something beautiful for me and that indeed I am the bestest mostest wonderfullest mommy in the world. And that makes me very happy indeed.

Hazel Smith is the bestest mommy, but now that her sons are in their 30’s, she no longer can fix problems with a kiss and a cookie. Newly retired, she has returned to an earlier love of writing. When her kids were younger, she was published regularly, but somehow got out of the habit of scratching down her thoughts and sending them off to editors. A recent article about her grandfather’s pioneering days in Western Canada, published in an anthology of women’s writing, has changed that. She lives with her husband and their cat; the husband is quite self-sufficient; the cat requires constant snuggles.