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Friday, December 22, 2017

Mercy in Decline

by Connie Miller

One
Somewhere in her late fifties, my mother started telling me I had to kill her. She’d reiterate the request periodically, as if to tattoo it onto my brain. “I can’t bear the thought,” she’d repeat, “of becoming bedridden and dependent. You have to kill me before that happens.”
My mother’s end-of-life plans, emphatic as they may have been, hovered like storm clouds on a far horizon, ominous but reassuringly remote. Until she started falling. She cracked her head on the corner of a table. There was blood on her carpet. The retirement community where she had stayed on after my father died was 2000 miles away from me. That distance, manageable for occasional visits, yawned, abruptly, into a chasm.
The day before Terry McVeigh bombed the Alfred P. Murrah Federal Building, she moved to my city. I’m not suggesting you compare my experience with what the bombing victims endured. It’s just that I could identify with Oklahoma City. I felt as if my own way of life was exploding.
I wanted to show up, be there for my mother, accompany her with grace through the last stages of her life. But I was petrified. In search of courage, I saw a therapist. In one of our sessions, she posed a question that reached into the core of what made me most afraid. “What’s so terrible,” she asked me, “about needing someone's help?” Somehow, seeing things through that disarming lens gave me the courage to move forward.
Growing up, I heard my mother recite a couple of lines of poetry often enough for them to stick. The lines belong to an epitaph for a man who broke his neck falling from his horse:

Betwixt the stirrop and the ground,
Mercy I askt, mercy I found.
For me and my mother, what lay “betwixt the stirrop and the ground” was the treacherous territory of her decline. Could we summon the mercy we needed to help each other navigate that unpredictable terrain?

Two
I found my mother an apartment in an assisted living facility near our house. I got her a walker to prevent future falls. My help, combined with the minimal support the facility provided, sufficed for about three years. Then, pneumonia landed her in the hospital. After a miserable recovery stay in a nursing home, she returned to her apartment. Within days, I realized that basic assistance was no longer enough. I contacted the Autumn Years Network, a quality assurance and referral program for adult family homes.
A Network representative, whose sincerity and warmth brought Mr. Rogers’ Neighborhood to mind, shepherded me around to several homes with a private room available. Anna's was the third home we visited. I had no clue what I was looking for but, when we walked in, I knew I had found it.
The place was immaculate and smelled of lemon cleaning oil. Five bedrooms and two bathrooms radiated out around a hub of common areas. Chairs for each resident clustered around a Formica table covered by a white plastic cloth and pink place mats. An enormous television dominated the living room.
“For the residents,” Anna told me. “Yeah, yeah. They sometimes have trouble seeing.”
Anna, the small, plump Filipina who greeted us at the door, owned the home. She lived upstairs with her husband and children. As we walked toward the bedroom that would soon be my mother's, another Filipina, Angie joined us. She was slighter than Anna with a less guarded smile. As the residents' primary caregiver, Angie lived on site and was available twenty-four hours a day.
The bedroom was clean, light, and across from a bathroom. A dark gray carpet covered the floor. A narrow cupboard stood against one white wall. The window, decorated with a colorful valence, overlooked Anna’s driveway and 148th Street. I glimpsed the tops of some pine trees about a block away. It stuck me, standing in the doorway of this stark but not unwelcoming space, that this was all my mother needed. A clean room, the single bed that we’d provide, a place to hang a change of clothes, a window showing a bit of green. At this stage, that was enough.
Anna and Angie described the services they offered and introduced me to the current residents, Kim, Everlynn, and Erma. I watched the capable way the two caregivers bustled about and communicated with one another. I smiled when Anna explained, good-naturedly, that locking the bathroom doors prevented Kim from unrolling the toilet paper. I listened as Angie, resting her hand on Everlynn’s shoulder, told me that the resident was in the late stages of Alzheimer’s.
“For the four years Everlynn has lived here, her daughter has never once visited,” Angie said. “Yeah, yeah” Anna told me, nodding. “Now we are Everlynn's family.”
They won me over. I gave Anna a deposit to hold the room. To fortify my instincts, I called the state agency that handles complaints against adult family homes. No one had ever complained about Anna's. I called references from a list the Autumn Years representative had given me.
"My aunt was an unpleasant woman," one reference told me. "Anna and Angie handled her beautifully." "Delightful place," another reference said. "They take wonderful care of their residents."

Three
Adult family home, the official definition: A home in a residential neighborhood that has been retrofitted to provide long term care services (not including nursing care) as well as room and board for a small number of elderly adults.
Adult family home, my personal definition: A place where you bargain away the last scraps of your mother's self-determination for your own peace of mind, for the assurance that she'll be safe, clean, kindly treated, and have a modicum of privacy.
When I arrive at Anna’s for one of my daily visits after work, Kim is sitting on the couch watching television. Everlynn is in her bedroom making the soft, private noises she always makes. Erma and my mother sit at the table eating. Angie is helping Erma eat. I move in beside my mother on a stool I pull over to the table. Everything is going along fine until Angie starts telling me about the night before. Then, she and my mother take up an argument they must have been having before I arrived.
"With that bed rail up," my mother says, interrupting Angie, "I can't get out of bed." She sounds indignant and pleased with herself at the same time, as if she just revealed some terrible truth that will finally enlighten me.
"It's for your own good, the bed rail," Angie tells her. "So you won't fall out of bed and hurt yourself."
"For my good," my mother spits back. "It's not for my good. It's for hers. I never fall out of bed."
Because of a throat problem, Erma can't talk. As she chews the asparagus Angie just fed her, she watches my mother and me with wide, sorrowful eyes.
"She trapped me in there with that bed rail," my mother goes on, "and then left me. I yelled for forty minutes but she paid no attention. And she had taken away my walker so I couldn't reach it. I was a prisoner in my own bed.”
“I had to go help Everlynn,” Angie says. She uses the bib that hangs around Erma's neck to wipe some food from the resident’s chin. “Connie,” she says, pointing a fork in my direction, “Connie, your own daughter, wants us to use the bed rail.”
My mother looks at me, waiting to see whose side I'm on. I try not to choose. “Why did you want to get out of bed?” I ask her. From the living room, Kim burps loudly but no one pays any attention.
"To go to the bathroom," my mother says. Her indignant tone is back, but the self-satisfaction is gone. She's unsure of me now.
"But you can't manage the bathroom on your own," I tell her.
"I can too," she says. "How would you know anyway? You've never even seen me go to the bathroom."
"Of course I have," I say. Dozens of times, I've witnessed by mother's bathroom battles. She stands in front of the toilet struggling to decide which way to turn so she'll end up facing the right direction. She cries, "I'm going to fall. I'm going to fall," as Angie patiently takes down her pants and the diaper she wears and guides her into a sitting position.
"Well," my mother says to me now. She's leaning forward over her mostly empty dinner plate. Her face has turned as pink as her plastic place mat and she's shaking. "You've just ruined me completely. Now they'll never let me do anything I want."

Four

My mother was christened Rosemarie but her small size at birth earned her the nickname Wee Willie Winkie. It stuck. She went by Winkie the rest of her life.
If you know one thing only about Winkie, know this: She was a reader. Each week, at the public library, she’d exchange one armload of books for another. After she washed and put away the supper dishes, she’d curl up on the living room couch to read.
The memories of my mother I cherish most revolve around finding her there. Whatever we started out discussing usually wound its way to one of my mother’s favorite poems. She’d quote a line or two and I’d hunt down the full poem in her poetry anthology, Other Men’s Flowers, which sits now on a shelf in my office. It was during one of those living-room discussions that I first learned about that all-important interlude “betwixt the stirrop and the ground.”
As I see it, my mother had the soul of an artist and a rebel. She loved words, both the sounds they made in poems and the stories they told in novels. She spent a year studying drawing and painting at the Three Arts Club in Chicago’s Gold Coast neighborhood.
But, at each significant turning point, caution and convention triumphed over soul. She was a chemical reaction, full of heat and light, to which the creators had forgotten to add a catalyst. The only art-related job she had, drawing shoes for a department store catalog, ended when the war was over. She drafted a children’s book about a parrot. That draft never found its way out of her bureau drawer. She married my father, a geologist who worked at an oil company, and became a fulltime wife and mother. Her passionate defense of liberal values at company cocktail parties, so at odds with her oil company lifestyle, earned her the nickname Mrs. Oil.
My mother recognized her inertness and, perhaps for companionship, pasted it onto me the way you paste clothes onto a paper doll. We both, she explained on more than one occasion, want to express things artistically but we simply lack the talent. Maybe her perception of our shared brokenness was why she came to me, rather than to one of my siblings, to die.
My mother approached her death in that same bifurcated way she approached her life. About her end-of-life plans, she was as passive as she was outspoken. What if, instead of “You have to kill me,” her refrain had been: “At a point where I become unable to take care of myself, I’m going to commit suicide. I hope you’ll support me and even help me if you see fit.” Would this story have an entirely different ending?

Five

At Anna’s, eating meant cleaning your plate. I’m sure the practice stemmed from some section in the adult family home guidelines. Decreased appetite and physical limitations make weight loss and poor nutrition a significant risk factor for the elderly.
When my mother arrived at Anna's, she weighed eighty-six pounds. From where she had bumped herself, large bruises the color of summer plums dotted her extremities. After only a few weeks as a resident, her cheeks were round and plump as if they contained a day's worth of gathered nuts. Her skin looked healthier. She didn’t bruise as often.
Anna and Angie pointed to her cheeks with pride. "See how much healthier she looks," they said. But my mother felt overfed. "Like a stuffed goose," she often told me.
I’d never known my mother to eat three full meals a day. A snack here, a snack there, and then a good dinner was her customary approach. By exercising vigilance and control, she'd always kept her figure (not easy for a woman five foot one or two). She had nothing but contempt for people who, in her words, let themselves go to pot. In restaurants, she’d point with her fork toward generously proportioned diners. “Look at those fat slobs swilling down all that food," she'd say, too loudly for my comfort.
Initially, my mother bargained to maintain her eating habits. "I don't need three big meals a day," she’d say each morning as Angie helped her to the breakfast table. But Anna and Angie persisted. "Finish your oatmeal," they’d coax if she tried to leave food on her plate. "Just a few more bites," they’d urge if she didn’t finish her mashed potatoes. In a remarkably short time, they wore down her resistance.
"We eat all the time in this place," she continued to complain to me. But, when I was there during a meal, I noticed that she’d resigned herself to finishing her food.
Each time I visited, my mother’s round cheeks reprimanded me. I recognized them for what they were: symbols of something that had been taken away. I suggested that Anna and Angie let her eat what she wanted, that it was fine if she didn’t finish. They didn’t argue with me, but my words bumped up against an impregnable wall. If the guidelines said feed, my mother was going to be fed.

Six

My mother delivers the accusation as if it’s the punch line of a caustic joke. “Angie manhandled me,” she says. “She made my arm bleed.”
It doesn't surprise me that my mother is accusing Angie of some form of abuse. On one level, it feels valid, a legitimate lashing out against dependency, against never getting your own way.
But, by the time she makes the accusation, I have observed Anna and Angie long enough to utterly trust their care. I can see Anna's point when she asks me to write a letter explaining that I know my mother is safe and in good hands. "For our records," Anna tells me, pointing to the locked cupboard where she keeps meticulously arranged binders filled with rental agreements, living wills, medication charts, and Do Not Resuscitate orders.
I write the letter.
Anna faces periodic inspections by the state. I understand why she complies, to the letter, with adult family home regulations. I understand how her obsessive compliance benefits me by ensuring that her residents receive the highest level of care.
But I also recognize how that same compliance denies the residents freedom of choice, possibly even denies them their humanity. How it imprisons them in a system designed to keep them safe.
What if I had moved my mother into my own house? Would she have been less of a prisoner, preserved more of her humanity? In my house, my mother could have eaten as much or as little as she wanted. But wouldn’t I too have relied on a bed rail so I could manage time to myself and still know my mother was safe? Would my mother have accepted the bed rail if she decided how much and how often she ate? Is it the bed rail that bothered my mother or simply that she needed one?
A friend sent me a quotation she found on a bookmark. The quotation is attributed to a theology professor named James Keenan. “Mercy,” Keenan wrote, “is the willingness to enter into the chaos of another.” My friend suggested that, for a caregiver, mercy means willingly entering the chaos of another person’s decline.
Having watched my mother grapple with the conventions foisted on her at Anna’s, it occurs to me that mercy factors in to both sides of a dependency equation. As caregivers, Anna and Angie and I faced the task of entering into the chaos generated by my mother’s decline. My mother’s task was no less daunting. Her dependency meant relinquishing control over the routines that determined the rhythm of her days. Mercy for my mother meant willingly entering the order that living at Anna’s adult family home imposed.
She didn’t always succeed. Witness the bed rail revolt and abuse accusation. And yet, there were signs that she broke through. Around Christmas, Angie took a month off to visit relatives in the Philippines. When I arrived at Anna’s the day after Angie left, my mother was agitated.
"I want to know Angie's last name," she said, as I was taking off my coat. I told her the name. I'd written it on a piece of paper I taped to the wall above her bed but she always forgot to look.
"Now I need her address in the Philippines. I want to send Angie a telegram."
"A telegram?" As I begin convincing her we'd be better off buying a card to give Angie when she came back, my mother interrupted me.
"I want to tell her how much I miss her." She was quiet for a few seconds. Then, she added, "We have our troubles, Angie and I, but I've gotten used to her ways.”

Seven
Decline is a sly companion, one who patiently accompanies you down a long, gradual slope and then, without warning, nudges you over a cliff. My mother never suffered a major stroke. Instead, a series of smaller strokes ate away at her ability to stand, walk, and, finally, speak. She spent her last months at Anna's bedridden and silent. Her plump cheeks deflated. She withered into a tiny bedridden being. To move her to the table for meals, Angie winched her in and out of a wheel chair with the help of a crane-like device called a Hoyer lift.
Her left arm developed an odd repetitive tic. It arced from the bed at her side up over her face and then back down onto the bed. Up over her face. Back down to the bed. For my visits during this period of her decline, I read books out loud, the cadence of my sentences accompanied by the rise and fall of her metronomic arm.
Eight

In the end, I did kill my mother. Immobility builds up secretions in the lungs and chest, which is why pneumonia is a common health problem for the bedridden. At Anna’s, my mother suffered her second bout. Referring to my mother’s living will, in which she declined interventions to prolong her life, I refused to let Anna administer antibiotics.
Surely, I reasoned, the life my mother was living at Anna’s was exactly the kind of life she had begged me to help her avoid. But would my mother have chosen that life over none at all? How do the wishes we express earlier in life stack up against the instinct to cling to what we know, to gobble whatever morsels of life may be left us? I don’t know if my silent, bedridden mother would have chosen treatment for her pneumonia. I never asked her. And what if I had? Would she have nodded or shaken her head? Would she have gestured with her hands? How much, at this point in her decline, did my mother even understand?
I read something recently about Paul Goodman, an American novelist, playwright, poet, and psychotherapist. He claimed that silences disclose as much as speech and that not all silences are the same. He defined nine kinds. What Goodman didn’t spell out is how to know which kind of silence you’re confronting. It seems to me that the story behind a silence must reveal itself through the eyes. What silence story did my mother’s eyes tell?
I wish I could say that her eyes told a story of “peaceful accord with other persons or communion with the cosmos.” Or of “awareness, pasturing the soul, whence emerge new thoughts.” My mother did, after all, evolve. Time and experience transformed her early abuse accusations into acceptance, and even appreciation, of Angie’s kind and capable caregiving.
Instead, the story I saw in those eyes, the eyes that tracked my comings and goings and traced the restless arc of her own metronomic arm, was a fraught combination: “the noisy silence of resentment and self-recrimination…” mixed with the simple silence of “bafflement.”
Writer Lynne Tillman tells an interesting anecdote about an open mic event at a workshop. After a bunch of other men had stepped up to the microphone, the musician John Cage came up. He started talking from the middle of the stage without amplification. People in the audience shouted at him to use the mic. Cage said you can hear if you listen. Everyone shut up and, when he spoke again without the mic, they could hear him just fine.
My mother had stopped using a microphone. I had so many jabbering voices in my own head—discomfort with how she spent her days, my selfish desire to end what I perceived as her suffering, guilt over how I carried out her end-of-life wishes, exhaustion with five years of visiting, monitoring, and managing her life—I’ll never know for sure if I achieved what John Cage’s audience achieved: shutting up enough to let my mother’s message come through.

Nine

Throughout my mother’s stay at Anna’s, I struggled to keep her enrolled in hospice. Enrollment gave Anna an alternative to 911. Enrollment protected my mother from the emergency room with its invasive and often brutal treatments aimed at prolonging life. Instead, with the supervision of a hospice nurse, she could stay at Anna’s and receive palliative comfort care.
Hospice, though, doesn’t play well with gradual decline. Enrollees still alive after six months are dropped. My mother kept cycling in and out. At the time of her pneumonia, she was out. I rushed to sign her back up. Because of the Thanksgiving holiday, I braced myself for a delay. But the Powers that watched over my mother during her lifetime came together to help her die. Hospice reenrolled her almost immediately. So, when Anna phoned the day after Thanksgiving (“Yeah, yeah. You better come,” she told me), we had everything in place.
When I arrived at Anna’s, an inhuman sound like a metal chair grating across cement ambushed me at the door. The sound came from my mother’s chest, from her battle to draw oxygen into her fluid-filled lungs. Anna and Angie had her propped on some pillows. Her face, the way her skin molded so tightly around her bones, made me think of a grasshopper. Each gasp hoisted her away from the pillows under her back. She appeared, at best, semiconscious.
I followed hospice protocol and called for a nurse. Because of a cancellation, she arrived within twenty minutes (those beneficent Powers!) and immediately applied a morphine patch to my mother’s arm. That drug was my mother’s permission slip. Within seconds, her gasping softened and slowed. Her noise, her struggle, ended.
“Your mother is dying,” the nurse told me, “but when she might die is unpredictable. It could take hours or minutes.” Looking hard at me, the daughter, the supporting actor in this drama starring my mother, she added, “Hearing is the last sense to go.” I had a final opportunity to comfort my mother, say whatever still needed saying.
Actress and playwright Anna Deavere Smith believes that you reveal the truth about yourself in those moments when language fails you, when your grammar falls apart, when you’re forced to dig deep for unrehearsed words. It’s a verbal shipwreck. You’re on your own to make it all work out.
In that small bedroom, crowded with well-meaning observers, my grammar fell apart. I approached my mother's side. Inhibited by the audience, I whispered, “Mother, I’m here. You’re not alone. I love you.”
I don’t think my awkward whispers qualified as shipwreck heroics, but maybe they were enough. Maybe, if you add it all up—inviting my mother to live in my city, finding Anna’s, visiting regularly, reading, refusing treatment for her pneumonia, bringing in hospice, overcoming my self-consciousness enough to murmur commonplace yet heartfelt words —maybe the total came to mercy.
Half an hour after the nurse applied the morphine patch, my mother fulfilled what Roman Emperor Marcus Aurelius calls one of our assignments in life. She died.


Connie Miller’s essays and articles have appeared in Under the SunIowa WomanWeb del Sol, a collection called Women and Stepfamilies, and other publications. She lives in Seattle. When she retired, Connie adopted an eight-week old black Labrador puppy named Victor. Her goal is for Victor and her to become a Reading with Rover pet therapy team. The process of training a dog, she’s learned, is as challenging and as humbling as writing.

Wednesday, December 13, 2017

Rambling Man

by Wendy J. Thornton

Once, long ago, when roving bands of hippies traveled the country, moving from place to place, drawn by dreams of freedom or just by the idea of living in a place with better weather, I met a young man who was kind enough to save me from sadness. See, I had fallen madly in love with a surfer who lived on the east coast of Florida while I lived on the west coast. The surfer was charming, popular, so handsome he practically made my heart stop and he didn’t know I was a nerd. We had a wonderful fling that I thought was the love of my life, but that he thought was—strangely enough—a fling.
When the surfer dumped me, I fell into a severe depression. I wrote bad poetry about my lost love, poems that included lines like, “Let me winterize my spirit so I will feel no pain.” I played mournful music like Simon and Garfunkel’s “Bridge Over Troubled Water” and Dionne Warwick’s “I’ll Never Fall in Love Again”. It got so bad my parents begged me to turn the stereo down or let them buy me headphones. I read tragic stories of lost love, Wuthering Heights, Anna Karenina, and even, God help me, the insipid Love Story. Echhh. I contemplated becoming a Buddhist. Then I could give up everything, including my never-ending crush on Surfer Boy.
One day I was walking on the beach, reading. That’s what I did to avoid talking to anyone. I walked up and down the beach with my nose in a book, daring anyone to interrupt my contemplation. But on this particular day, someone managed to insinuate himself into my consciousness.
He swam just offshore, and as I walked by he leaped in and out of the waves like a dolphin, laughing and yelling, “Hey girl.” I looked over at him reluctantly. I didn’t want to be disturbed by happy.
His hair was curly and wild, and he wore thick glasses even in the water. But he didn’t look or act like an intellectual. He had on baggy black shorts with bright flowers, and he picked up his towel from the edge of the shore and started dancing with it, twisting it across his shoulders, wearing it like a skirt, acting like he was a matador brandishing his cape for a bull. I tried not to watch, but whenever I looked up, he was dancing, watching me. When he saw me look, he’d let out a maniacal laugh.
“Whacha reading?” he asked suddenly, appearing so close beside me that I could reach out and touch him. I was startled. I didn’t know how he got there. He was magic, teleporting. He grabbed the book out of my hand. “To Kill a Mockingbird? Why don’t you just cut your wrists now?”
“This is a classic,” I protested.
“Classic depressive,” he said. “My name is Billy and you’re too young to be reading such sad books.”
“I’m not that young,” I said. “I’m sixteen.” And I have lived forever in this agony…
Billy waved his fingers in the air. “Ewww hoo, ancient woman. Pardon me, oh ancient one for not recognizing your sage wisdom.”
I tried not to like him. Really. He was quite obviously a hippie, one of the first I’d ever met. He talked about traveling around the country, hitchhiking from place to place, with no discernible means of support. I had a huge family, two very overprotective parents, two brothers, two sisters, and lots of other relatives, all of whom felt it was absolutely necessary to tell me what they thought about everything I did all the time. Truly, I could not imagine what it would be like to travel the country alone. It sounded like heaven. Particularly in my current state of depression and sadness. To me, Billy was very lucky.
We talked a lot over the next few days. I even skipped school to visit him. He told me that he was sleeping in a stand of woods just off the beach near my house. So one morning, as the sun came up, I got dressed as if I were going to school, and slipped out to visit him. I walked into the woods, looking for a tent or something, some kind of campsite. To my surprise, once I got fairly deep into the forest, I found Billy curled up in a sleeping bag, a backpack by his side, and nothing else. Did he really just sleep out in the open like that?
I slipped up beside him in the early morning light. “Excuse me,” I said politely. “Uh, good morning.”
Billy looked at me, then scrambled up, a startled look on his face. “Girl, are you crazy, coming here by yourself? Don’t you know I could rape you? How do you know I’m not some kind of crazy murdering fuck who’s going to stomp you to death and rip out your heart?”
“I just know,” I said.
“You have too much trust.”
“Actually, I don’t care what happens to me.”
“Now that’s a really stupid statement.”
“I have some money,” I said. “Would you like to go somewhere for coffee?”
Billy thought about it for a moment. A very long moment. I so wanted to talk to him. There was something about him, something so free of the normal attachments, the usual accessories of life. I wanted that freedom. I wanted to stop thinking about my lost boyfriend, about our recent move to a new city I hated, about my old friends I would never see again. I wanted to take off and travel the world, be independent with no ties to anyone. I thought Billy could make that possible.
For hours, he let me talk about all the things in my life that seemed to have gone wrong. He nodded and smiled and sipped coffee and never seemed to judge me. “You’re having a tough time,” he said.
Well, finally! Someone understood. I mean, yes, I was a sixteen-year-old white girl living in an upper-crust middle-class neighborhood on St. Armond’s Key cherished by multiple family members, but damn it, I was suffering!
Only thing bothered me: Billy didn’t seem take me seriously. He had to be at least ten years older than me, maybe fifteen. But he seemed so youthful, not like the adult men I knew, men like my dad who worked long hours, who always seemed to do what was right. I knew without even bothering to ask that my father would absolutely hate Billy. Billy did what he wanted to do. He was a free spirit.
At breakfast, he told me that he had gone over to New College, a local liberal arts school, and sat in on some classes. This small college had been designed by the famous architect, I. M. Pei.  In my new high school, I’d demanded that our high school newspaper cover some of the concerts held at the college, instead of just covering sports and cheerleading.
New College was considered very liberal and its students were supposedly a little “loosey-goosey” as my father would say, but I couldn’t imagine someone walking into a strange classroom and listening to lectures without permission. Billy said he liked the lectures, but not as much as the ones he’d attended at Antioch and Oberlin. I was so jealous—I wanted to go to Antioch or Oberlin. I couldn’t wait until I graduated from this nerdy high school in Sarasota so I could go somewhere they could teach me something important.
“Why do you just sit in on classes?” I asked. “Why don’t you sign up for college?”
“Who are you?” he replied with a laugh. “How do you think I would pay for that?”
It had never occurred to me that anyone would have to worry about such a thing. I knew I would go to college, knew that somehow my parents, who didn’t have a lot of money, would come up with the means for me to go. Of course, I’d be expected to work, to help carry my own weight. I’d get scholarships. But I thought anyone could go to college if they wanted to.
We spent the afternoon on the beach, talking. He told me about all the countries he’d visited, and all the amazing places he’d seen in America. “Have you ever seen the Grand Canyon?” he asked.
“I haven’t seen anything,” I replied morosely.
“Oh, man, you gotta ride on the Pacific Coast Highway, Kid. You ain’t lived til you’ve seen the Pacific from those cliffs. Have you ever been to the Rockies?”
I repeated, “Really. I’ve never been anywhere.”
“Poor baby.” I was young but I knew sarcasm when I heard it.
Late in the afternoon, he told me to go home. “You got to eat dinner with your family,” he said.
“They don’t care.”
“But I do. Go on. Get out of here. Don’t come back til tomorrow. And Kid?”
“Yes.”
“Wait on the beach—don’t come back into the woods, okay?”
I shrugged and walked home. It was so exciting to have a secret. I never got in any trouble. I was the kind of boring girl who answered all the questions in class before the other students had a chance. I was the “curve breaker.” My family had recently moved from Ft. Lauderdale where I had finally started to make friends, to Sarasota where I knew no one. I’d finally found one serious boyfriend, Terry, and he dumped me for—wait for it—an older woman. She was seventeen.
Now it seemed I had something special going, a relationship with someone new. I was a virgin—I couldn’t even imagine sleeping with someone. But Billy seemed safe. He seemed like someone who wouldn’t take advantage of me. He didn’t even try to kiss me.
The next day I showed him some of my poems. He read a couple, then paused over one particularly sad piece. “What is this?” he asked, showing me the poem.
“Oh, I was a little depressed when I wrote that,” I answered.
“A little depressed? Winterize my spirit?” he shrieked. “What kind of crap is that?” Before I could protest, he ripped the poem into a hundred pieces and threw it into the wind like confetti. “Don’t write stuff like that,” he said. “You don’t know how lucky you are. You’re beautiful.”
“You’re not even a good liar.”
“I always thought I’d meet a beautiful girl like you someday. I thought I was Jughead, you know? You know that cartoon?”
Confused, I asked, “Archie and Jughead?”
“Yeah, yeah, yeah,” he said excitedly. “I was the guy who could eat and eat and eat and close all the restaurants down. Had my good friends Archie and Reggie. I was in love with poor old Betty and she was always in love with Archie. You could be Betty. You’re in love with someone else.”
How did he know?
Later that afternoon, I said, “You know, I’ve always wanted to travel. We could run away together. I could be Betty and you could be Jughead.”
“Aww, Babe,” he answered, “I stopped being Jughead a long time ago.” He was so unutterably sad. This was the first time I realized that perhaps I wasn’t the only one recovering from a broken heart.
But as the day drew to a close, I knew he’d be leaving soon. “I want to go with you,” I said.
“Where?”
“Anywhere.”
“Are you fucking crazy? I live in the woods. You’re a baby. I can’t take you with me. How would you live?”
“I could live in the woods with you.”
“How would you eat?”
“I don’t eat much. I have some money.”
“How much?”
“Uh, sixty-eight dollars.”
He laughed. “Sixty-eight dollars? You’re kidding, right?”
“We’ll be living in the woods. How much money do we need?”
He shook his head and laughed again. “You’re crazier than I am, Kid. Sure, sure, you want to go with me? Let’s do it, what the hell. We’ll go. I’m heading to California. You’ll like it there.”
“When are we leaving?”
“Tomorrow. I’ll meet you at New College. You know where the Student Center is?”
I nodded. I’d been to the New College Student Center a few times.
“I’ll meet you right there,” Billy said. “At the newspaper stand. You know where that is?”
“I do,” I answered. I was finally beginning to get excited about something. I would travel the world, hitchhike around the country with this wild man, forget all the heartbreak and the boring trajectory of my old life. Billy kissed me goodbye on the forehead, and I told him I’d meet him at nine the next morning.
That night, I had serious misgivings about my plan. My family suddenly seemed so precious to me. My parents, those hopeless people who didn’t understand me at all, suddenly seemed perceptive and kind. My rotten brothers and sisters, who tormented me and made my life hell, had suddenly become funny and happy. I’d miss them all so much. But by God, I was going.
The next morning, I got up before dawn and snuck out of the house. I rode my bike to the newspaper stand in front of the Student Center. I had a paper bag full of clothes, dresses and underwear, and I had my sixty-eight dollars. I had a big sunhat and a tiny bikini. I was going to California. I would lock my bike to the newspaper rack, leave my mother a note attached to it, and be off on a new adventure.
I waited. And waited. And waited. The sun rose on the horizon until it beat down on my shoulders and warmed my sunburned back. Finally, feeling like a lost child, I got back on my bike and pedaled into the sun towards home. I never even learned his last name. It took me years to realize what a decent thing Billy did by leaving me behind.


Wendy Thornton is a freelance writer and editor who’s been published in Riverteeth, Epiphany, MacGuffin and many other literary journals and books. She is the author of a mystery, Bear Trapped: In a Trashy Hollywood Novel and a memoir, Dear Oprah: How I Beat Cancer and Learned to Love Daytime TV. Her latest memoir, Sounding the Depths, was published in October. Her work has been nominated for a Pushcart Prize, and has appeared in England, Ireland, Australia and India. Wendy started the Writers Alliance (www.writersalliance.org). 

Tuesday, November 21, 2017

Chapatis and Change

by Sean Talbot

The traveler sees what he sees; the tourist sees what he came to see.
—G.K. Chesterton

Days float through Udaipur, Rajasthan, like beggars indifferent to distinction. The warm January sun shimmers on Lake Pichola, reflects the region's august history in its murky water. There are three clouds in the sky, more than in the week since I arrived.

Across the street from Café Edelweiss, where I am eating dessert before breakfast, a blind local man stands on a speed bump, white cane in hand. Dark skin and cataracts, thick mustache, carefully combed hair. A rusty sign hangs from his neck. A message in Hindi is painted in beautiful script. What I presume to be the same message in English is written in a sloppy hand, blue text on white:

My Eyes Opration.
Please Help Me.

He holds a receipt book in his left hand, a written record of those who have not ignored him. It is open to the first page. He wears a five o' clock shadow, and leather cross-trainers, dirt-ridden and worn like the oily hands of the motorcycle mechanic who works in the open air nearby.

Does the blind man know that the gold chain fitted to his neck shimmers in the sunlight? Can he hear my steady eyes upon his, or sense the traces of my guilt for staring into a face of India which cannot, for once, stare back?

In my ears, these are raucous, electric thoughts; my heart beats amplified in my ears like the temple bells ringing in a nearby alley.

We both turn our heads toward the clangor.

A group of boys line up outside the cafe, on the street side of a chainlink boundary; one, then three, then seven of them, holding hammered iron bowls, like lidless kettles. Inside them, small, sculpted men sit upon beasts soaked in black oil, covered in marigold petals.

For weeks, I’ve wondered what gulf exists that would keep the "open-hearted" traveler in me from connecting with, or relating to, the locals, a land that defies and contradicts every adjective I've used in attempt to capture it.

Kana,” a boy says, over and over again. "Pani."

He can't yet be nine years old. He looks me hard in the eye, points to his mouth, then to my plate, and back to his chapped lips.

Food, water.

Every guidebook, hotelier, rickshaw driver, and doctor I’ve met since arriving in India has given me the same advice: do not give to the beggars; they come into the cities because there’s more money in tourists than in farming. Giving does them no good.

"Chapatis, sir, chapatis," says a barefoot boy wearing soot-covered clothes. The boys stand one meter away from my table, behind a chain hung like a velvet rope in a cinema queue line. There are no chapatis on the silver screen of Café Edelweiss; only white people and pastries and dark chocolate. My table is on the front lines: fellow tourists talk and eat behind me, seated strategically deep in the cavernous, piss-yellow dining room.

I want to show my compassion. I want to let the boys know that I see and hear them, that change is possible. But that’s just what they’re looking for, my doctor friend had said.

The boy adorns puppy eyes and whimpers. I want him to leave. I cannot even use the Hindi phrase I learned in Varanasi for banishing touts—nahi chaiye, I do not want. These children offer me nothing, want only my food.

"Hello, sir, chapatis." A hoarse, intimate whisper from the old beggar this barefoot pre-teen will someday become: "Please."

Two nights ago, I saw him squatting in the street, near a fire of burning garbage. His companions were huddled in tight circles: understanding, community, friendship. Things I cannot—do not—offer him.

Instead, I ignore him, all of them, and their pleas for kana; hello, please, sir, chapatis.

Sir, please. Hello?

I cannot—will not—eat in front of them, nor can justify teasing them with the two sandwiches on my table, both heaping with eggs and bacon. I pretend the sandwiches are not there. I write instead, holding my tears back because maybe they'll think I'll break, and then they'll have full stomachs for the day, and return tomorrow, psychologically and digestively reinforced, expectant.

My downward glare renders me into another deaf tourist. The tourists at the tables behind me talk louder as the boys hold up the bowls and ask, in the same melancholic whine, kana, pani, please sir, ma’am, chapati.

Silence from the nosebleeds. The boys leave.

I am an awful, selfish voyeur. Another white invader whose economic contributions profit hotels that shun locals as a cultural norm. A Bikaner hotelier said to me, any unmarried Indian couple cannot, by Indian law, stay in a tourist hotel.

If, by chance, a foreigner befriends a local, the latter is typically not allowed in the foreigner's hotel. In the case of my friend Rita, a British woman who invited an Indian restauranteur to dinner at our hotel, the owners enthusiastically said the local, who worked at the hotel across the bridge, was "a good Indian man, and is welcome here!"

For most of us tourists, however, they fear rape, or robbery, or some other sin for which we do not have a word.

After twenty eternal minutes, the rest of the boy beggars move on, unfazed by rejection, determined as when they arrived. Will the customers at the next café feed them, or the one after that?

There are programs to help the poor, the guidebooks say. If you want to help them, donate to the following causes.

The guidebooks say nothing, however, of the heartache in seeing a man, like the one sitting under a tree in Pokhara, Nepal lifting his amputated, gangrene femur in the air with one hand, and a rusty tin can in the other, marked simply, $.

That gulf between us seems wider than the Pacific Ocean. Airplanes and cargo ships could not bring me closer to the little boy standing three feet away, who has returned to the cafe’s chain barrier. Perhaps he saw something in me and came back to retrieve it.

Who am I, exactly, that I would refuse a child food at the word of a rich doctor or a guidebook written by a western author, which both say it would do the child ‘no good’? How can one who has not known true hunger say such a thing? If my friend Kokayi, an American activist whose mission is to end child hunger in the United States, saw me now, he would dash our friendship to the dogs.

Who am I to deny a request for a photo, as I have, from an Indian family on holiday, or a few rupees to a local woman in the park? Is it because I wish for a connection based less on transactional experience, or that I would prefer the barter economy of buskers or street artists, a few rupees for a song? What if these children have not had the opportunity to learn an instrument, or how to use their voice, but to beg to survive the day, or a mother's callused hand?

What inalienable right have I, a fellow human, to project expectation or desire upon a culture that asks so little of me? To think: I want an experience to have a particular impact on me; I need to see this or that, or need to feel as if my experience is somehow authentic. I loathe the roles this little boy and I have been born into, pointlessly, for we are equally bound to our respective ranks in the caste system.

In many parts of India, tourists and travelers alike—particularly Westerners—are automatically inserted into a predetermined slot of economic import. We are ushered to the front of lines at train stations, hospitals, treated kindly by hoteliers who routinely hit dog- and boy-beggars with sticks.

Oh, that I could offer them anything!

Already I deny the boys something so easily given. I could buy each one of them a sandwich, filled with protein and served on fresh-baked bread. I could pay out-of-pocket for the eye opration for the blind man.

So why don’t I?

Because I’ve been conditioned to think that it wouldn’t change anything. Lonely Planet and Slumdog Millionaire declare that compassion and guilt are juicy prey for the Begging Industry; that, regardless of my intention, the money would certainly end up in the hands of kidnappers, rapists, and sleazy businessmen, and that no amount of change would keep these boys from returning to Café Edelweiss tomorrow.

The impossible gulf between local and foreigner widens. If it is not, as they say, what happens to us that matters, but how we react to it that hones our character, I wonder if compassion, in this case, isn't quite enough.


Sean Talbot is a writing coach and Alaska commercial fisherman based in Portland, Oregon. His writing has appeared in Everywhere All the Time and Airplane Reading. He writes about place, home, and culture in his blog, Stumptown Lives.