bioStories Blog is an extension of the online magazine bioStories: www.biostories.com. Essays from the magazine, news, updates on contributors, and other features appear here.

Showing posts with label children. Show all posts
Showing posts with label children. Show all posts

Monday, May 25, 2020

The Animal Lover at Seven and Thirty-seven


by Hannah Melin

        When Avery grows up, she will be an “animal rescuer, just like her Mom!” Every adult in Avery’s life is assigned an animal: a kangaroo for her father, a vulture for her mother. For the first week as her babysitter, I am watched cautiously from behind a stuffed lion. After a week of careful consideration, I am labeled a zebra.
        No jokes are made about Erin’s title as a vulture. Erin grins and swings Avery around in a hug when she correctly recites a fact on the wingspan of an African Condor or the lifecycle of a Common Turkey Vulture. Above their television set, framed photos of Avery in diapers are mixed in with fuzz-headed owlets, fledgling eagles, and newly hatched vultures. Foot-long, sleek black feathers are tucked between well-worn romance novels and dog-training guides.
        Avery’s hands are always ready to grip, touch, and pet. She pinches her crayons tightly between her fingers, drawing savannas with thick, heavy lines. The skin that stretches across her palms is porcelain pale, interrupted only by light freckles. Erin’s hands grip lightly. Arthritis, she says, from zoo work. The skin is paper-thin and as pale as her daughter’s. Scratch marks and scars cover her thin hands, running up past her wrist and onto her forearm. The razor-width cuts seem to track decades of self-harm, a conclusion dismissed only by the photograph of a younger Erin holding up her forearm for a massive Horned Owl to perch.
        Avery sinks into the comfy couch, immersed in a Disney movie while Erin leans against the kitchen counter, staring into her coffee mug while I sip from mine. She talks about the latest tragedy at Animal Kingdom: an aggressive male Grant’s Zebra broke out of his holding pen in the night and into the pen of a resting mother and her three-month-old foal. It trampled the foal to death and ripped off the mother’s right ear. She tears up, covering her mouth as she tells me how the mother whinnied and bayed for hours. She’s furious that the locks weren’t strong enough, but she never blames the male. It’s a survival mechanism, she says, to ensure their genetic line survives. A female won’t mate with a male if she has a foal. The male will kill the foal to confirm his own lineage. She’s glad no keepers tried to intervene during his rampage; she’s certain they’d have been trampled. The attack never makes the newspapers and I try not to wince when Avery gives me a crayon drawing of my animal avatar.
        Avery knows to ask owners if she can pet their dogs before approaching. She assures me that she knows lions, leopards, and tigers are all deeply dangerous creatures. She scoops up Rosie, a Chilean Rose-Haired Tarantula the size of my fist, without hesitation. She giggles as the fanged spider walks across her hands. She asks me if I want to hold her. I decline, but I do let Valentine, a six-inch Corn Snake, wrap around my wrist. Once I’m preoccupied with the small warmth making its way to my fingertips, Avery plops Mr. Bojangles, a six-pound Bearded Dragon, on my shoulder. It scrambles on my t-shirt and falls asleep, staining my sleeve with raspberry juice. Raspberries are its second favorite snack, after live crickets.
        Avery’s best friends are carried around with her at all times. A balding stuffed zebra, a lion Beanie Baby, and a dull yellow dog. If she moves from the room, she scoops them up in her forearms and lines them up in their new position. She engages in a constant dialogue with them. If I ask one of the stuffed animals a question, she responds in a squeaking character voice, but her personal conversations with them are one-sided. She speaks to them, pauses, and continues on with a new talking point. She doesn’t see the point in giving them voice when she already knows what they would say. Erin thinks she’ll grow out of it any day now.
        Erin attended a parent-teacher meeting last month, where one of Avery’s teachers was concerned by Avery’s introversion. She’s the same as Erin was at that age, Erin recalls. Erin seems proud to tell me that Avery prefers animals to people.
        Three months later, Snowball, their twelve-year-old house cat, drops dead in front of her food bowl. Erin sobs into her pillow. It’s too much, she says. Such reactions adds to her belief that her husband will leave her. She thinks her ex-boyfriend has been stalking her (“Make sure you lock the doors,” she tells me, “but I don’t think he’d hurt you”). She’s convinced Avery will spend the rest of her life talking to stuffed animals. She thinks she’s going to lose her job because of her arthritis. To not work with animals, she says, that would be worse than death for me.
        I tell my mother what Erin said on the car ride home. My mother has to pick me up when I watch Avery into the evenings. I’m not allowed to drive at night until I’m old enough to get my Class D.
        Avery chases their Pitbull mix around the yard, whooping and giggling. The sun glints off her hair, turning it into a writhing, glimmering halo. She stretches open her arms, inviting the dog to jump onto her and knock her into the grass. The dog does not bite, but he plays rough. Pink ridges rise across her upper arms where his dewclaw scrapes, not quite deep enough to draw blood. He shoves into her side, hard, but she tackles him back, squealing.
        At age seven, the animal lover knows no fear. She does not bother to adjust for the rest of us. She spends recess hunting for garter snakes and doesn’t bother with the comments made about her on the swing set. She lets every creature, ant and elephant alike, crawl into her heart.
          At age thirty-seven, the animal lover learns the weight of these creatures. She lets every one of them into her heart and onto her skin. They leave more scars than she can count.

(The names in this essay have been changed to protect the identities of those featured.)
Hannah Melin is a writer working out of Dallas, Texas. She studied Creative Writing at the University of Central Florida where she worked as the Fiction Editor for The Cypress Dome literary magazine. After graduating, Hannah worked as a literacy teacher for the Peace Corps on islands throughout the Eastern Caribbean. Hannah's nonfiction has been featured in Big Muddy. Her fiction has been featured in Monkeybicycle, Heart of Flesh, Night Picnic Press, and The Metaworker.

Thursday, May 23, 2019

Cutting Words


by Tracy Youngblom
         
          You know, he begins, an older person or someone in worse physical condition wouldn't have survived.
          Yes? I say, hesitant to pursue this line of thinking.
          It's better that it happened to me. I was strong and in good shape, so I didn't die. Someone else would have died.
We are seated in the waiting area of his therapist in vinyl armchairs, hemmed in by a door on one side and a small water cooler and white-noise machine on the other. We have barely made it up the stairs.
You sound like you’re saying you’re glad it happened to you? This is supposed to sound neutral, but it comes out as a question.      
As soon as we’d entered the building, I'd remembered clearly: no elevator. I ought to have remembered, since Dan had been my sons’ therapist for years; he’d saved at least one of their lives. Defeated, I pushed Elias in his wheelchair to the foot of the stairs.
          Can we do this? I asked. Do you want to reschedule?
I felt worse than stupid: barely two months post-accident, and it was my idea to start therapy. Now I'd done it. He'd been ready to talk, but now we had no way to get to the second floor. He'd been taking a few steps at a time from his bed to a chair in his hospital room, but after months in bed, he had little strength to spare. I had introduced an impossibility.
          No, I'll just use the stairs.
          I helped him stand and pivot, then lower his body backward onto the lowest step. He hoisted himself upward with his arms, pushing off his stronger right leg, one painful step at a time. I climbed behind, carrying the collapsed chair.
          We made it—he made it. Now we sit chatting, waiting for the appointment. We have no life outside recovery, so we discuss the accident and its aftermath.
          He is upbeat today; maybe the triumph of the stairs. We are recalling the details of his salvation at the hands of the many, the impeccable timing of it all. The first bystanders on the scene (one of them an EMT) removed the windshield so his bleeding would slow down in the brisk March air; the First Responders extracted him from the car in less than 20 minutes; the helicopter transport the State Trooper had called was waiting. Everything lined up perfectly. Maybe the miracle was simple: his life was saved by the timing.
Besides miracles, I am always aware of a severe irony: the drunk driver who ran into my son head-on escaped unscathed. She was on a joy-ride, going the wrong direction on the freeway, at 2:00 in the afternoon. Her injuries were minor: a broken ankle (a lifetime of addiction?).
It’s true he survived when he shouldn’t have, but recently we learned he was not so lucky; because of the force of the impact and the consequent swelling, he has been struck blind.
          I am grateful for his life, but when he suggests it was better for him to have been hit than someone else, the conversation turns serious.
           That’s hard for me to hear.
          I know.
This honesty and get-to-the-truth-fearlessly tone is one gift in the midst of much challenge. We have thrillingly deep, intimate conversations almost every day—every parent’s dream. But I am not thrilled to hear this.
          Then the door opens, and I wheel him in and wait in the white noise until the session is over and he can sit facing forward this time and bump down the stairs to my waiting car (down is much easier, we discover).
          Later I tell myself, forcefully, that I cannot be expected to be glad my son was in this accident. I cannot be expected to accept his conclusion, on top of everything else I’m expected to accept. I tell it to myself so vehemently, it almost sounds like I’m telling someone else, like God.

More than two years post-accident, Elias is himself full-force: tough, funny, uncompromising. He lives alone, brooks no objection. We don’t have daily interactions—more like weekly. I have had to abandon the worries that used to keep me up at night, have had to ward off vivid fears: of fire, of burglars, of knives and guns, of hit-and-runs, of evil-intentioned strangers. Of another unexpected call, this time the death of me (him).
I think I have done well and deserve some recognition. My son thinks otherwise. Or, he doesn’t think of me that way—as a stand-up, an example. Someone to praise, protect.
Maybe that’s why today, as we are driving, talking as we often do about the arc of this strange experience, he does it again: stops my heart with his casual observations.
I think I’m a different person since the accident.
I cringe; I think I know where this is going. Sensing my doubt, he gives a few general examples: less arrogant, more grateful.
Well, you don’t know what would have happened without the accident, I offer. Probably you would have turned out the same.
No, he says, certain. No, I’m better. I’ve turned out better.
Do you mean you needed to change? And there wasn’t any other way?
Now it’s his turn to hesitate.
I’ve grown up, he says. I’m less self-involved. Less. . . his voice trails off.
I don’t push it, though I want to stamp out this line of thinking, stop this smoldering mess before it spreads, engulfs both of us. I am not as shocked as I was two years ago, however, hearing him suggest it was better that this accident happened to him. Now he’s just pondering unforeseen benefits. I don’t like the implications, though I understand his eagerness to express gratitude for this life he’s been given.
But I am still surprised at the suggestion that this was our Fate. I don’t accept it with the brightest face possible. He can’t see my face, so he doesn’t know that I grimace often, my eyes cloud with mist, that I shake my head sadly, almost unbidden.
It’s the damn accompanying emotions that always stymy me. They lurk under my sunny surface, threaten to erupt in bouts of cursing: Jesus. Jesus Christ. Jesus Christ Almighty.
Recently, I confessed to Elias that I swear more—too much—these days.
What do you say? he asked.
I told him, and he laughed.
Mom, that’s not swearing. If you’re going to swear, make it count.
I stay quiet in the car, listening. I can see he’s also grappling with emotions, half-surprised at these insights that are just words—but words, words: all we have to invoke peace, to ward off fury and fear.
To pray, if we choose.

Tracy Youngblom earned an MA in English and an MFA in Poetry from Warren Wilson College. She has published three books of poems, most recently One Bird a Day (2018), along with essays and fiction. Her individual poems, stories, and essays have been published in journals including Shenandoah, Wallace Stevens Journal, Big Muddy, Briar Cliff Review, Potomac Review, Cumberland River Review, Cortland Review, Ruminate, Foliate Oak, St. Katherine's Review, Westview, and many other places. Her work has been twice nominated for a Pushcart Prize. She lives and works near Minneapolis, teaching English at a community college and working with adult writers in the community.

Friday, June 8, 2018

Sequence

by Sarah Belliston

Ever since my son Jack could walk, he’d head to my bookcases and pull the books from the shelves into a pile. Sitting there like a hen hatching chicks, he’d pick a thick volume and set it on his outstretched legs. He’d turn it sideways so the weight of the book rested on his feet and the cover opened into his lap. Then his dexterous middle fingers would run along each side of the book, catching just one page, and flip it down. One by one. Over and over. When the book was finished, he’d turn it around and repeat the process. My family joked that he was reading; I joked that he loved books as much as I did.
At eighteen months old, a team of doctors diagnosed Jack with autism spectrum disorder.

A hybrid is something born from two different species, or a composite built from two different things. Hybrid cars are supposed to be good for the environment. We would not have the purposeful inventions of the liger, the tangelo, or the blood lime without hybridity. (Lions and tigers do not live in the same areas so the crossbreed of the liger has only been documented in captivity.) Because of their genetics, these hybrid animals are often, though not always, infertile.
At conception, the DNA of each parent is put into a blender and cut into pieces, so the child gets a unique mix of the parents’ chromosomes. When those chromosomes merge to make sequenced pairs, they can only match with the same structure. Different species have different structures, but related species like zebra and horse or citrus fruits have enough in common to make a hybrid. In plants especially, the seeds sometimes carry the genes for multiple colors or varieties. Depending on how the plant is pollenated, a recessive color could become more common despite being he recessive trait. When the seed grows up to have the same desired trait as the parent plant, gardeners call this being “true to the parent.” Many genetic probabilities work the same in plants as in humans. These probabilities can sometimes be determined by a Punnett square.
For example, my husband, Scott, has a genetic blood disorder called hemochromatosis. Two of his five siblings also have the condition, which is relatively mild as long as you know you have it. Those with the disorder absorb too much iron, which can cause liver failure if left unmanaged for too long. Another relative had hemochromatosis and developed cirrhosis of the liver late in life, never once having drunk alcohol. My husband has to get his iron levels tested every few months. When his iron becomes too elevated, he donates a pint of blood, which makes the body produce new blood, which in turn uses up the high iron levels and returns his system to normalcy.
Before we married I took a blood test and found out I carry the recessive gene for hemochromatosis. One study estimates that ten percent of Caucasian people are a carrier, and one in 200-500 develop the disorder. Our Punnett square looks something like this:

Sarah h

Sarah H
Scott h
hh
hH
Scott h
hh
hH








Each of our future children would have a fifty percent chance of having hemochromatosis and a one hundred percent chance of being a carrier.
My mother asked me if I was okay with these odds. I said yes. I married my husband. His genes mixed with mine and the sequence of our combined DNA made a hybrid, what we thought was a good hybrid with smiles and laughs and ten fingers and toes.
I considered the known problems, but I didn’t think of the unknown. When autism appeared, I wondered what our Punnett square would have looked like. And what my decision would have been.

Some autistics have symptoms from birth, while others go through a type of regression, usually before the age of five. This regression involves a breakdown of neural pathways in the brain that can affect communication and sensory perception. Some regressions happen overnight; parents wake to find an autistic child in their neurotypical child’s bed. This kind of regression produces the common metaphor of autism as a kidnapper that has stolen the child.
Other autistics, like my son, regress slowly, so slowly I couldn’t tell you exactly when it started. All I remember is that after his first birthday I noticed more and more signs. By his fifteenth-month well-child visit I had to admit he hadn’t met any of his communication milestones. At the hearing screen a month later, I watched him lick the hinges on the door as the specialist said, “Have you considered autism?”

Science doesn’t know why people develop autism. A Punnett square is impossible. There may be a genetic component, but if so, scientists have identified over 200 possible genes that could mutate in multiple ways and result in a spectrum disorder. My most recent talk with a geneticist said they can identify a genetic cause in less than ten percent of cases. The identification success rate gets even lower when the autistic does not have intellectual delays. I think of Jack and how he did first grade math at four years old. Testing him wouldn’t give me any more answers. My husband’s sister was diagnosed with Asperger’s after we were married. Her son, who is a few years older than Jack, is also autistic. It was in the sequence all along.

There is no cure for autism. Instead there is what I like to think of as “symptom management,” which usually consists of behavior modification therapy. This therapy focuses on substituting wanted behaviors for the isolating repetitive actions autism is known for, like replaying the same five second portion of a video 200 times or flipping pages in a book for hours.
Jack started behavior modification soon after diagnosis. When he was almost three, we decided to stop. Behavior modification works amazingly for many, but it didn’t work for Jack. The therapy had made his behaviors worse and caused a larger regression. Before using behavior modification, he mainly ignored my attempts to interact with him. After the intervention he would lie down and will himself to sleep in order to escape unwanted stimulus, i.e., me.

Six months later after we stopped behavior modification, Jack was more interactive with me but we weren’t making any progress on his communication. I travelled across the country for a weeklong training on a different kind of therapy based on relationships and social communication instead of deterring behavior.
The program is called Son-Rise and has a reputation in the autism community for the claim it can cure autism. I was more interested in the therapy because it focused on attempting to understand the purposes behind the autistic’s actions. The program also has the central idea that the reward for social interaction should be the joy of the other person, not a treat or motivator (as in behavior modification). So, instead of a cue to look someone in the eye, the parent/facilitator acts in a way that makes them interesting to the autistic and then rewards any glance with an overexcited response. In essence, they teach the autistic how interaction with another human being can be fun.
By the end of the week, there were many things about the program I knew would not work for my family or my child. To complete the program with fidelity, you need a dedicated playroom where the autistic stays for eight hours a day while different volunteers rotate through, ensuring that every moment is maximized for therapy and the environment is controlled to decrease the likelihood of surprises for the autistic. I could do the gluten-free and casein-free diet they suggested because Jack only ate a few items anyway. But when they told me to take away screens, I balked. Since then, I have come to see the wisdom in their words. Some autistics, and some neurotypical children, have delicate nervous systems that cannot handle the input from a personal, interactive screen. They become isolated, irritable, and have frequent meltdowns. However, Jack is not one of those kids, at least not yet.
So when I came home, I adapted the new therapy to our family and my son. We used our whole house as his playroom and tried to be observant and ready to interact with him all the time, instead of just for set hours. I saw an immediate increase in Jack’s eye contact and verbal communication. When I slowed down and focused on his reactions, he gave me more of them. When I flipped pages next to him, he stopped flipping and came over to take my book, which would turn into a game of passing books from one pile to another. Our “game” was a baby step to interaction, but leaps ahead of where we were before. Our future suddenly looked brighter, and the trip we’d planned to visit my brother across the country looked brighter too.

At the Son-Rise training, one female facilitator told a story of helping a child to say their first word. When she tried to celebrate with the parent afterward, the parent denied hearing their child speak. The session had been videotaped, and the trainer said she had to play back the tape three or four times before the parent could hear what their child had said. When I heard this story, I wondered how it was possible for a parent to ignore auditory evidence, but on that trip to visit my brother, I found out exactly how it could happen.
Sometimes Jack connects with people right away. When we got to my brother’s apartment, Jack connected with his then twelve-year-old cousin, Tyson. A good big brother to three younger siblings, Tyson happily sat with Jack in front of the television. They watched the credits of a show scroll by, and Jack supplied a steady stream of what I thought was gibberish. Tyson said, “I think he’s reading the names. I can almost understand what he’s saying.” I brushed off the idea immediately. I had heard this gibberish plenty of times when Jack stood in front of our television at home or flipped pages in his books.
Later that night I sat on the floor next to Jack as his three-year-old hands and eyes concentrated on an iPad. He had gotten into an ebook app and was flipping the digital pages as fast as he could. A steady stream of gibberish accompanied the motion. I thought about what Tyson had said. I scooted closer. Jack’s gaze was fixed to one spot on the screen, the top left corner of each page. Staring with him, I listened again and it was as if a translator had been slipped into my ear. All of his gibberish suddenly made sense. I heard “the,” “and,” “this,” and “can.”
Jack was speaking.
Jack was reading.
His sequence was wrong. He read the first word of each page instead of left to right and top to bottom. He read heavy volumes instead of picture books. But there was no denying it anymore. I wondered how long he’d been reading, how long I had been unable to hear.
I felt for those other parents, the ones who didn’t understand their child’s first word. Maybe their child was like Jack who, I realized, often dropped consonant sounds, so “pig” was a short i sound and “horse” was “ohss.” Maybe the parents were like me and couldn’t believe their child spoke because the action was tied to something unimaginable, like a child who could read before he could speak, or like understanding that autism doesn’t break someone’s brain, it only makes them process information in a different sequence.

In critical disability studies, there is an “affirmation model” of disability. The idea is that society and culture have trained people to view and portray disease and disorder as negative and pejorative. This model analyzes literature that highlights the good events or actions that wouldn’t otherwise happen if disability didn’t exist. Words in the Dust is a novel that tells the fictional story of an Afghan girl with a cleft palate. The deformity allows her to pursue an education, whereas fixing her cleft palate would result in marriage and little opportunity for learning. In John Elder Robison’s memoir, he writes how his undiagnosed Asperger’s allowed him to understand machinery in a way that led him to create pyrotechnics for KISS after he dropped out of high school. Naoki Higashida, a nonverbal autistic, writes in his book that taking away his autism would fundamentally change who he is as a person.
After reading these stories, I wonder if autism will turn out to be a positive or a negative for Jack. I’m not sure what about Jack is his autism and what isn’t. I don’t know if his ability to match his voice to any melody or sound would still exist without autism, or if his laugh would still bubble up from his center and spill over into everyone within hearing distance. Would his unusually blue eyes still twinkle? Would his gaze still make people stop and pay attention if it was more frequent?

In truth, I don’t know if my husband’s gene pool caused my son’s condition, gifting him the particular sequence that resulted in his autism. There are more members of Scott’s family with autistic qualities, but it could be something in my genes that is hidden in me but manifested in Jack’s hybrid sequence. A theory called the female protection effect thinks that genetic mutations must be more severe to cause autism in women, which means that I could have passed on faulty autism genes to my son without having any symptoms myself. Another study found that copy number variations (where sections of DNA are repeated and the number of repeats varies between people in the population) are more commonly passed on from the mother’s egg than the father’s sperm. At least for one specific area called the 16p11.2 region, found in about one percent of people with autism. However, the study points out that simply having a mutation in this area does not mean the individual will always develop autism.
At this point in the research, it feels to me like it’s just as likely that everyone has a gene that could result in autism. Autism affects almost every family I know. Some more than others. One in fifty-nine children are diagnosed on the spectrum in the United States. The statistic just changed in 2018. The rise is attributed to the growing number of mild forms of autism getting an official diagnosis. An article I recently read talked about the detrimental part of having a genetic profile. Two individuals with the same sequential defect can have very different outcomes. Genetics do not determine prognosis, and yet if parents know of a serious mutation, they may think their child is not capable of progress.
After diagnosis, the thing I most wanted was for someone to tell me that my son was capable of learning, that spending hours and years trying to teach him would result in success. I didn’t want to put him or myself through the hardship of therapy without a guarantee. If he lacked ability, maybe the kind thing would be to leave him happily sitting on the floor alone with his books.
Maybe he was happy there by himself, but I also know that he was happy when a few months ago he wrapped his little arm around my neck and gave me a kiss for the first time.
Even so, I am going forward with more genetic testing. If there is an answer in the sequence, I still want to know.

I used to think that autism appeared one day and changed my son. When I began this essay I wanted it to be about how my son was a hybrid of himself and autism. But really, autism was part of him all along. I am the one who has become the hybrid.
I spent my life before Jack unconnected with autism. Now, it is my life: in my life, my house, my writing, my brain, and my heart. I begin each day thinking of autism. I’ve become the autism lady, always ready to regale people with my laundry list of facts and opinions. Now those opinions include the possibility that perhaps my son has benefited in some way because of his hybridity, his sequence.
Moments are more important to me now than milestones. I judge my success as a parent, and Jack’s success as a child, not on achieving the goals we set, but on attempting them. I have hope and am more willing to entertain the impossible. If I had never thought my son was capable of reading, I would not have been listening, and I never would have heard his words.

Sarah Belliston lives in Utah with her family while she attends BYU for her MFA in Creative Writing. She loves a good book, a good movie, and a good musical but hasn't figured out how to do all three at once. 

Wednesday, December 14, 2016

Hand-Me-Down Kid

By Terril L. Shorb

My childhood included a stretch of living at or below the poverty line. The oldest of six children and head chore-boy on our small, subsistence farm in northwestern Wyoming, I drove tractors rather than sedans right up to my junior year of High School. Not once in all those years did I get a whole can of soda to myself and rarely wore clothes off the rack. It was more like wearing them off the back of someone I knew. This role as “hand-me-down” kid first caused embarrassment, and then later in life, a curious kind of pride.
      It is said experience is the best teacher. And I’ve got to say that living on the edge is a pretty effective teacher’s aide. My Mother was a magician of the “can-do” spirit. She was the Queen of re-use, and on our farm little was wasted and most things enjoyed interesting new lives. An Uncle once joked that his Levis, which had served well in his many roles as irrigator, hunter, and back-hoe operator, would finally get an education when I wore them to school. 
      I wore blue-jeans rolled into cuffs and shirts whose shoulders lines hit me mid-way to my elbows because I wasn’t lanky like my older relatives. One of the smart-mouths in English class asked loudly one day how come I kept shrinking. I rode the school bus home that night and announced to my Mother that I wasn’t going to wear anymore hand-me-down clothes. Fine, she said, adding with a grin, as long as I completed all my wood-chopping, hog-slopping, egg-gathering, water-lugging, and other chores each day, I was welcome to take on extra projects from neighbors for extra cash. Needless to say, there simply wasn’t an extra minute or ounce of energy left at the end of the day. I felt defeated and even ashamed to go to school, where I expected to be the butt of jokes.
      One day I was visiting my maternal grandfather, who presented me with several pairs of Levis. They were in good shape, but because Grandpa was huskier, the pants were roomy enough for me-and-a-half. I was about to rudely refuse when he handed me something else: a hand-tooled leather belt with a silver buckle—one of several he won earlier in his life as a champion bronc rider. “This oughta cinch up those britches,” he offered. Suffice it to say I practically paraded my hand-me-down pants and that belt around school and drew admiring glances and comments from a few boys and girls!
      From that time on I had a whole different attitude about wearing clothes that had worked for someone else. I realized the shirts or pants or jackets came with stories from a hard-working life: “These pants were worn by a man who helped to dig the big canal from the Buffalo Bill Dam.” Or, “This flannel shirt was there the day my cousin got the eight-point elk up in Sunlight Basin.”
      I was hopelessly hooked on clothes that had been out and about in the world. A tiny rip on the back side of one denim shirt from my step-father vividly brought to mind, every time I slipped it on, images of a rangy old Hereford cow who knocked him up against a corral post when he tried to separate her from her calf for vaccination purposes. My imagination was off its leash around those 'here-you-go' clothes because, unlike store-bought versions, they've been tested by life, just like the people who wore them.
      Nowadays, I look for hand-me-down clothes in thrift stores because I've grown up and moved on from the people who used to pass their garb onto me. I still enjoy the sense that each time I purchase a new-old piece of clothing, I'm also walking out with a little bit of living history whose next chapter we will write together.
      And there's another thing about hand-me-down or thrift-store-pre-owned clothes I appreciate. I was reminded of it the other day when I cruised the aisles of a favorite second-hand store for long sleeve shirts for the coming autumn. Two rows over, in the boy's section, a mother handed her ten-year-old son a twenty dollar bill and told him to find his shirts for the new school term. I watched as the boy prowled the racks, tried on and then selected a half dozen shirts. He paid for the whole fall wardrobe with the single bill. Outside, where he rejoined his Mother, he was fairly vibrating with excitement, eagerly showing her what he had found. They moved off to a saggy old Ford pickup, and the kid still wore a huge grin as they pulled away. I offered up a silent thank you to all the families who had donated clothes, recalling how important it is in young lives to know people care enough to hand you down—or along—the very shirts off their backs.


Terril L. Shorb believes he was very fortunate to have grown up on a ranch in Southwestern Montana and later to have experienced life both in the urban sphere and on a subsistence farm in northwestern Wyoming. He has been a journalist and most recently a teacher at Prescott College where he founded the Sustainable Community Development program and continues to work with students toward a more sustainable Homo sapiens. His writing has appeared recently in Green Teacher Magazine, Whole Life Times, Kudzu House, and Cargo Literary Magazine.

Thursday, January 14, 2016

Keisha, Urban Warrior

by Desirée Magney

          The familiar Marimba African rhythms chimed and I glanced at my iPhone to see who was calling. “Blocked Call.” It could have been a solicitation or a wrong number, but I knew it might be a defendant in one of my cases or, more importantly, one of the children.  
          It was the children who were my clients, but that didn’t stop the parents or guardians from calling me. Any time of the day or night, any day of the week, these calls came in. Of late, I had been working a particularly difficult case.  Seeing the disintegration of this family was akin to watching a train wreck in slow motion and I was at a loss to know how to stop it. The local evening news had reported another drive-by teen shooting in Anacostia. My stomach clenched. Was it my boy? I worried about these kids I represented as if they were my own.
          “Hello,” I answered tentatively. It was Keisha, the defendant mother in one of my custody cases.
“Miss Desirée, will you please come to mental health court with me tomorrow?”
Keisha was the biological mom in one of my cases. I was the lead attorney and was assigned a “shadow” attorney who would assist me. My shadow, Joan, and I hadn’t known each other previously but we became fast friends over the many hours spent pouring over case files, researching criminal background records at DC Superior Court, and talking over the unusual facts of this case. Joan would travel from Manassas, Virginia, catching the Metro train from Vienna to Judiciary Square, a good hour plus commute. We met at the DC Superior Court, Joan with a baguette always in hand, to begin our long hours playing detective, tracking down the facts, and requesting related case files. We bonded over lunches at the courthouse café, discussing Keisha’s children as well as our own, early on discovering we had daughters born on the same day, same year. We called them our twins. I asked her why she always carried a baguette. She explained it was for the long trip to and from the city. Thin and athletic, she admitted she didn’t act out of hunger; rather, she had a theory if she ate enough bread it would soak up any liquids in her system and she wouldn’t need to pee during the long commute. We laughed, a great diversion from delving into the heady, complicated lives of the parties in our case. As a fellow woman of a certain age, I understood what Joan meant. In that instant, we bonded.
A few years ago, I became a child advocacy lawyer with a non-profit organization. I was there at its inception at the invitation of a longtime acquaintance. She and I, like many others women lawyers we knew, had suspended our practice of law when we had children. Now that our children were getting older, there was a feeling that it was time to use our legal training pro bono to give back to the community. I served as a court-appointed guardian ad litem, representing disadvantaged children in often harrowing child custody cases.


Keisha was the biological mother of a number of children, two of whom we now represented. She wisely had given up custody of all of them. Having suffered for many years with drug addiction, she admitted to using crack cocaine throughout her pregnancies. Impoverished, she often found herself homeless and prostituting for drugs and money. She had been diagnosed as bi-polar and had been in and out of drug treatment centers and psychiatric hospitals. With no way to support herself, let alone her children, she had the good sense to know they would be better off elsewhere.
 She gave two of her children to a neighbor woman, Kim, who couldn’t have any children of her own. Tamika and Samuel had lived with Kim since their birth and were now teenagers. They knew Kim wasn’t their biological mom, but she was their real mom in their minds, although they regularly talked to Keisha and saw her on occasion. Kim finally had decided to legalize her custodial arrangement over the children. Joan and I were baffled as to why, after all these years, Kim would choose this point in time to come to court to seek an order of custody. But Kim had been recently disabled and unable to work and it eventually became clear that she needed a formal custody order to be able to obtain more benefits. Meanwhile, Keisha never disputed custody and the man listed as the defendant biological dad, Jimmy, didn’t dispute it either. At times, the entire group seemed like one big happy family. Joan and I weren’t sure why the court even felt the need to appoint a guardian ad litem in this case, given that none of the parties contested the best placement for these children. But obviously, the court had questions and as time went on, we understood why.
For years the case dragged on, the court and Joan and I reluctant to relinquish oversight of these children, wanting to keep an eye on their progress, as I recommended in my status reports and relayed in court hearings held every few months. As the kids became older teens, Kim was less able to exert any control over them. They rarely went to school. Kim would call me at 6:45 in the morning, even when I was on vacation, and ask me to talk Samuel into going to school that day. Tamika regularly got into fights, shoplifted, and was on probation. She lashed out on the streets, at school, and at home, once even throwing cleaning solution at a relative.
Joan and I got to know Keisha, Kim and her boyfriends, Jimmy and his latest woman friend, and most importantly, Tamika, and Samuel, as well as their great grandmother, aunts, and uncles. We had visits to Kim’s homes and the children’s great grandmother’s home. We talked on the phone to school and to community counselors, principals, and teachers. We attended numerous meetings at the children’s High School, met with the children’s education attorneys, the police, and Tamika’s probation officer. We tracked down allegations of physical and sexual abuse. Joan and I sought counseling for the kids and got them placed in Sasha Bruce, an organization offering services for at-risk children. We were more social workers than lawyers. Desperate for this family to survive, to thrive, we spent countless hours on the phone discussing their circumstances and what else we could do for them.
Meanwhile, tensions had been rising between two Anacostia neighborhoods. Tamika, hotheaded and ready to battle at any perceived slight, got into a fight at school one day defending her brother. Samuel, soft spoken and sweet natured, with beautiful, long dreadlocks, had been accosted in school by a group from another neighborhood. Tamika defended him in the hallway. Security guards broke it up and the police were called. Joan and I went to the local police precinct to discuss what appeared to be rival neighborhood gangs and the impact it was having on our clients. The police officers said the groups weren’t gangs, just feuding neighborhoods. It seemed to be a distinction without a difference.  
A few days after the incident at the school, shots rang out at the Anacostia Metro station.  Samuel was targeted. The shooters were cruising, looking for the “kid with the dreads” but found his cousin instead. The shooters missed and continued their search for Samuel. He began receiving threatening Facebook messages. At that point, I was no longer willing to visit the family in their home, not wanting to risk becoming a drive-by shooting victim, a very real possibility even if accompanied by security personnel provided by the legal non-profit. Kim had a car, so I asked the family to meet at our offices instead. Kim and Samuel arrived, his once lovely dreads freshly shorn. Kim was upset.
“Can you believe he cut his dreads? My boy cut his dreads! He shaved his head!”
I cocked my head and furrowed my brow at her. Sometimes the kids had more sense than she did. How could she be so oblivious? At least he knew what he needed to do to survive on the streets.



Meanwhile, Keisha was dealing with her own demons. During the pendency of the case, she was in and out of drug treatment programs, often homeless, and was arrested once again for prostitution. But she came to court for each custody hearing—unless she was in rehab or jail—and supported her children the best way she knew how by staying in contact with them and buying them things whenever she had money. The kids stayed in touch with Keisha’s family—their biological grandmother and aunts and uncle. Keisha seemed sincere in her attempts to “right her wrongs.” She would ask Joan and I to pray for her. She always thanked us for the job we were doing helping her children. It was clear to me she loved them. In my mind that was evident by the fact that she gave them up. But she struggled to get her life in any order to take them back.
She was enthused when a halfway house program taught her some computer skills and tried to help her prepare for her GED. But I still needed to sit with her outside the courtroom before each hearing and quietly read aloud my findings in the status report I had written for the judge. We sat shoulder to shoulder on a bench outside the Family Courtroom as I read to her in hushed tones. It broke my heart to have to read the truth I had written about her, the truth I had to tell the judge. But Keisha listened attentively, shook her head in acknowledgment, and slowly ate a piece of Joan’s baguette as I read—baguettes that Joan now brought as much for Keisha, as for herself. We never knew when Keisha had last eaten.
As she quietly listened to me reading the sometimes brutal truths of her transgressions outlined in those court filings, somehow we became closer, and I realized Keisha’s inner strength, her realization of who she was, and her determination to try to change. Although, she could have easily resented the candid nature of my reports, she knew I was only doing what I had to, by virtue of my position upholding her children’s best interests under the law. She accepted these truths for what they were even though she fought against what seemed to everyone else to be her fate.
“Oh, that Keisha. She’ll be back on the streets in no time,” Kim would say to me when I told her that I had heard Keisha was back in rehab. “She’ll never get better. You wait and see, Desirée.” But I had faith.
So when I got that call from Keisha asking me to meet her in mental health court, I agreed, gently reminding her that I was not her attorney but that I would be glad to be there for moral support. She assured me she already had a court-appointed attorney for these hearings. If she could get through the mental health court diversion program, her record would be expunged, but it entailed her staying in rehab, going for drug urine tests, and not getting re-arrested.
I met her outside the courtroom the next day. We waited for her attorney to arrive so that he could enter her name on the already lengthy, post-lunchtime docket. It was going to be a long afternoon. When the judge returned from lunch, the courtroom doors were opened. Keisha and I found seats a few rows from the defendant’s table and waited for her attorney to arrive and her name to be called. Keisha relayed the latest about all her children, showed me photos of her new grandbaby, told me of her newest drug treatment program. She was excited to be given yet another chance. She looked good. Her hair was set in small plaits around her head. Her skin had a healthy glow. She was smiling.
We did this three times. At what would have been her fourth and final hearing—the one at which the judge would have presented her with a rose and a certificate of completion—she arrived at the courthouse looking disheveled—her hair was dyed pink in places, and her skin was blotchy. My chest tightened. I knew these were bad signs. She sat down and proceeded to tell me that she had gone off her psych meds, had been arrested again, and her urine tests weren’t clean. I knew it was likely the US Attorney’s office would recommend jail time. I placed my hand atop hers and told her how sorry I was. I also told her that I had faith in her and that ultimately, I knew she could do it. I reminded her how often she had picked herself up and that I was certain, she would again. She smiled weakly and squeezed my hand.
Shortly after that day, Kim moved herself and the kids out of DC into Maryland. As a result, the custody case in which I had been the guardian ad litem was dismissed for lack of jurisdiction. I lost touch with the kids. Even though they had my phone number, technically I wasn’t to contact them.
A month later, my iPhone rang. The caller ID gave no name or number. Keisha couldn’t afford her own cell phone any more but she had good news to report. She was back in rehab, doing well. She had picked herself up once again, was soldiering on. I couldn’t help but smile and feel hopeful she could do it this time, against all odds.
She told me she wasn’t happy about the further distance between her and the kids but she no longer felt she had a say in the matter. I had assumed Kim’s move was prompted by the annoyance of having the court and I oversee her life with a fine-tooth comb. Keisha confirmed this without my asking. Keisha updated me on the kids and her continuing concerns about them. She confided in me that Kim had yet to enroll them in school, even though weeks had passed since the move. She thanked me once again for all that Joan and I had done to help the kids and all the support we had given her. She told me to say ‘hi’ to Joan and to thank her for all those baguettes. This was sounding like her final goodbye to me. I didn’t want it to be. I wanted to know what lay in her future. Then, just as I told her to stay in touch and we were about to hang-up, she said, “I love you, Miss Desirée.”
In the split second following her words of gratitude, I imagined what other lawyers would say in response. The ethical lines of professional responsibility can get blurred sometimes. As lawyers, we are supposed to maintain a professional distance between the parties to a case and ourselves. I had admittedly already crossed this line by sending food baskets to the kids on Christmas and their birthdays, filled with edible treats I knew they wouldn’t be able to afford, a sports book for Samuel, and a journal for Tamika to write in whenever she felt she was about to lose control. Each time we met outside the courtroom, everyone hugged, not something most lawyers do. So, it didn’t take me but a millisecond to respond to this kind and gentle woman, who needed all the support she could get.
“I love you too, Keisha.”


*The names of all the parties to the case have been changed to protect their identities.




Desirée Magney is a writer and attorney. She writes both nonfiction and poetry. Her work has appeared in Bethesda Magazine, Washingtonian Magazine, The Washington Post Magazine, The Writer’s Center—Art Begins with a Story, and Jellyfish Whispers. She was honored with a “Best in Workshop” reading at The Writer’s Center in Bethesda, Maryland. She is a Board member for the literary journal, Little Patuxent Review, contributes to their blog, and has been one of their fiction readers. She has two adult children, Daniel and Nicole, and lives in Chevy Chase, Maryland with her husband, John, and their dog, Tucker.